Fibromyalgia | Feeling Stuck? Try These 3 DBT Tips

Image from ThisIsYourConscience.com

Image from ThisIsYourConscience.com

It’s no joke when you wake up to feeling that there is nothing you can do to make your life better. This may be especially so when you have a chronic illness like fibromyalgia.  There are just sometimes when your life seems to be going nowhere and the only thing you have to look forward to is another day of symptom management.  Such moods can pass quickly, i.e. given your temperament and support network.

Still, what if it doesn’t?  What if you continue such negative self-talk and feel unable to break the cycle that you’re in? Well, the outcome surely isn’t going to be of benefit to you, your self-esteem, and achieving your goals.

So, before you get to that point, I wanted to share with you 3 tips from DBT (Dialectical Behavior Therapy) that may get you out your rut.

I’ve discussed DBT in various posts, so I won’t go into full details here. Suffice to say that DBT, developed by Marsha Linehan, is a form of therapy that uses the Buddhist practice of mindfulness and incorporates a cognitive behavioral approach to making positive change in your life.

Of course, there is a great deal more that goes into DBT.  The 3 tips below, however, might just be ticket to making this day one that lives you feeling inspired to do more and experience more in your life.

  • Opposite to Emotion Action – Although one of the last suggested techniques to changing your emotional circumstances, Opposite to Emotion is the first technique I turn to when needing to motivate myself.  Opposite to Emotion (from the Emotion Regulation skill set) asks of you to do the contrary action to your present emotion/thoughtsSo, let’s say that your mood is so low and the last thing you want to do is to take care of yourself.  Well, do exactly the opposite, i.e. take care of yourself. In this case, taking a shower, eating well, taking a walk, etc.

 

  • Nonjudgmental Stance – This is one of the last skills that is learned in the first DBT skill set of Mindfulness.  Taking a Nonjudgmental Stance means taking an objective distance from your present circumstances.  It asks of you to 1) observe your experience nonjudgmentally, i.e. without trying to change them, 2) describe your experience nonjudgementally, i.e. without condemnation or praise, 3) participate in your experience nonjudgementally, i.e. allowing yourself to be wholly involved in whatever you are doing.  I use nonjudgmental stance when I find myself in confusion about the actions or inactions I’ve taken in my life.  I aim to get at the heart and mind of my present circumstances, so that I can better understand how to change them.

 

  • Improve the Moment This is one of the four basic skills learned in the Distress Tolerance skill set.  Simply put, do what you can to make the moment better and not worse.  Focus on decreasing levels of stress and, if possible, removing yourself from the environment that may be contributing negatively to your experience.  This is where techniques such as imagery, finding meaning in the moment, utilizing prayer, practicing relaxation skills, taking a one thing at a time approach, taking a literal vacation from the place, seeking or remembering encouragement. 

 

Individually, each one of these 3 tips works wonders.  However, when put all together, I believe that you may experience even a greater shift.  I would add to the tips helping others.  I find that when I take the time to help someone else, it helps me to feel less stuck and more motivated to experience positive change.

 

Until Next Wednesday,

D.

Fibromyalgia| Life in Chaos? 3 Steps to Creating Routine in Your Life

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Know this Feeling? (Image from GIS)

At this point, if you’ve followed my blog, you’ll know that my life is far from what one might call normal.  Still, it is my reality.  A part of that reality is having to deal with the inconsistency of my chronic illness, i.e., fibromyalgia.  There are some days that I feel great, like I could go run a marathon or two, and there are some days when even the thought of opening an eyelid seems like too much of an effort.

With such fluctuations in one’s daily experience, it can feel hard to create a sense of order to your life.  After all, what’s the point of making plans for the next day you’re never sure how you are actually going to be?

Over the years, I’ve engaged in an internal psychological warfare, trying to force myself to feel better when I don’t, blaming myself for real and imagined shortcomings, and even giving up on myself when I fell short of my expectations.

The path to living peaceably with fibromyalgia is far from smooth. However, over the past year, I’ve been working on letting go of my self-frustrations, allowing myself to feel whatever I feel, and strategizing how to take small steps that move me healthily along my path.

Image from GIS

Learn to Enjoy Life. (Image from GIS)

So, here are 3 steps that I’ve found useful to keeping internal order even when everything else feels like it’s in utter chaos:

  • Do 1 Thing the Same Way Every Day: Choose one helpful thing that you will do every day no matter what. Don’t cut corners.  Why? Because it helps to create a 1)sense of routine, 2) shows you that you can do what say you will, and 3) moves you a further step along your path.  So, what are some possibilities?  Depending on where you are in your journey, it could be as simple as taking care of your personal hygiene or working on a personal project (for me, that would be writing).  It’s up to you.  As long as whatever you choose moves you closer to your life goals, then it is A-OK.

 

  • Make Lists: If there is one thing that bothers me most about having fibromyalgia, it is dealing with brain fog and memory issues.  In the past, when I felt like my mind could not focus or I could not remember something important, I would really come down hard on myself. I took a massive blow to self-esteem because I did know how to accept and strategize around my illness.  Now, I make lists, especially if I know there is something important coming up. I would suggest having a bulletin board in a place where you cannot avoid seeing it, and posting your lists there.  If you’re not into the bulletin board idea, then I would suggest posting it on your refrigerator…after all, you have to eat at some point.

 

  • Write Down What You’ve Done Each Day:  At the end of the day, even if you didn’t move from your bed, write it down.  Write down who you spoke to, if you took your medications, if you made it out of bed, what daily goal you accomplished, and any and everything else. Write it down.  I do not mean that you should journal–although journaling is not a bad idea. I mean that you should take notes on what you do or don’t do each day.  It will help you to understand your personal patterns.  If you do this long enough, you can see how your symptoms might be impacting how much of what you can do in a day.  It doesn’t hurt, so try it.

 

I cannot promise you that following these steps will change everything in your life.  I do believe, however, that they are the beginning steps that will take you closer to where you would like to be.  Remember the key thing is consistency.

It doesn’t matter what you decide to do–how big or small it is–just be consistent.  Learn to appreciate the small steps you can take, so that when you are able to take larger steps, you understand the magnitude of your accomplishment!

Happy Fibro Friday! 😉

Can Black Women Have Negative Body Image?

“Black women don’t have the same body image problems as white women. They are proud of their bodies. Black men love big butts” – Tyra Banks

From article “Black women and weight: Relocating to the South helped one woman change her self-image and accept her body” on TheGrio.com. Click to read.

I came across the above quote while searching for “negative body image Black women” on Google. My first reaction: “What a load of crap!”  My second reaction: “Really, what utter nonsense.”

Certainly, women of different races/ethnicities/cultures may have different body image issues.  To go so far, however, as to imply that all Black women “are proud of their bodies” is to deny the reality of Black women and girls who struggle on a daily basis with body image issues that may ultimately lead to eating disorders as well as an utterly tanked self-esteem.

I get the point that Banks is trying to make, however.  She is reinforcing a stereotype that Black women are happy with their curves–it’s not a bad stereotype really.  Also, I’m a big fan of being happy with your body no matter its current state–simply work on where you need to go, whether that is up or down some notches on the scale.

On the other hand, this stereotype is one that can work to keep Black women from moving their bodies more and becoming healthier. After all, if we love our curves so much and our “big butts”, then what’s a few extra pounds or 30?

Actually, let’s back that up. Is Banks actually saying that black women “love big butts”?  Not really.  What she is saying is that “Black men love big butts.”  So, in essence, the comfort level that a Black woman feels with her own body is apparently in direct relation to the acceptance of Black men of her body proportions–WHAT?

Well, what if you’re a lesbian, or a feminist, or just a free thinker, or all three rolled up into one ball of fierce loveliness?  Also, why should Black women value their bodies based upon the desires of Black men?  In fact, why should any woman value her body based upon the desires of any man?

Perhaps my lesbian (homoflexible), feminist, free thinking self has just gotten this quote all wrong.  Still, it bothered me.  It bothered me because I was searching for information that would useful to Black women who are struggling with negative body image.

The reality is that It’s easy to find resources for non-Black women.  Absolutely. I know from experience that the majority of young women and girls who are in treatment for eating disorders are non-Black.

It’s not that negative body image does not exist for Black women.  It’s not that eating disorders have no place in a Black woman’s mindset.  It’s simply that it’s not openly discussed.  Anorexia, bulimia, and binge-eating disorder do not discriminate against Black women.

There is a stereotype that Black women are happy with their bodies in an unhealthy state.  There is a stereotype that Black women don’t care about what they put in their mouths.  There is a stereotype that Black women don’t suffer from eating disorders.

It’s time to clear up this mess. First, let’s do so by balancing the good of the stereotypes with the harsh reality that some Black women face. It’s no joke that the CDC lists heart disease as the number one killer of Black women. Let’s start speaking more mindfully and seeing each other as humans first, capable of both joy and suffering at our own hands.
Until Tomorrow (seriously)

D.

Fibromyalgia & the New You: How to Begin Restructuring Your Life After a Loss of “Self” (Part 1)

hyperrealism,art,swim,swimming,relax,

A decade ago, the word fibromyalgia didn’t exist in my vocabulary.  To be honest, my relationship with illness was that I was never ill in any serious way.  I lived to work and study, which eventually jeopardized relationships.  That way of functioning, however, was what I was taught growing up.  You were suppose to disregard all else in favour of work, whether physical or mental.

I saw my body and my mind as tools to be used relentlessly.  I would work from 6 a.m. to 2 p.m. at one job, then jump in my car, drive one hour, and then work from 3 p.m. to 11 p.m. I worked every holiday–a habit that I did not break until I moved to Italy. I volunteered to work when someone else didn’t want to, or called out, or whatever.  I made myself overly reliable, and everyone knew they could ask me to step in to help at any time.

Work trumped all else.

So, what happens when a person who self-defines through excessive work (“workaholic”) loses the ability to overwork or even work?  In Rome, we say sono distrutta/o (“I am destroyed”) when something happens that is overwhelming and/or devastating.  I think this expression is apt: you feel a huge part of you has been destroyed.  There is a shattering of the self, a destructive blow to one’s inner worth.

However, the blow doesn’t happen just once.  There are many blows, one for each thing you realize that you can no longer do.  Moreover, the blow aren’t just internal.  You receive external blows that land in the form of judgement, dismissal, and utter disregard…even from the people for whom you once bent over backwards to help when you were well.

That, sometimes, isthe harsh reality of having this illness.  Some people may begin turning their backs on you as they come to realize that you can no longer do what they want/need.  Although such experiences can hurt, they offer you the great opportunity to begin understanding who your real supports are, who you can really trust, and where you actually stand.

Knowing where you stand with yourself and with others, I think, is the one of the most fundamental aspects of beginning to restructure your life after any sense of loss of “self.”   In an earlier post, I wrote about reality checking, i.e. making certain that you understand what is happening in you and around you. Knowing where you stand with yourself and with others is, in essence, reality checking.  One might even call it being mindful to self and environment. Regardless of what you choose to call it, simply do it.

First, take stock of you, what’s going on within you.  Open yourself up to a non-judgmental inner dialogue, and encourage yourself to express all that is challenging you when it comes to your illness and the impact that it has had on your life thus far, or even what fears you may have about the future. Be honest with you.

Second, speak directly with those around you. Open yourself up to non-judgmental external dialogues, and encourage others to express to you how your illness challenges them, what scares them about it now and what they worry about in the future. Of course, make sure you express your thoughts and feelings as well.

Remaining in a non-judgmental stance is vital, in my opinion, to understanding 1) where you are, 2) where you are going, and 3) where you might prefer to go instead. It keeps you here and now, but with a distance that allows for some objectivity about your life.

It’s true that having fibromyalgia can suck the life out of you. However, you do not have to allow fibromyalgia to suck you out of life. Yes, things are different now. Yes, you have no idea how it’s all going to work out.  Yes, you are scared.  All of those things are okay. Your feelings are you feelings and they should be owned you.

Still, having fibromyalgia isn’t the end of the world.  It may be an ending of a chapter of your life as you knew it.  And now you can write a new chapter.

Until Tomorrow,

D.

Fibromyalgia: Let’s Not Beat Ourselves Up!

DUI of negative thoughts

I woke this morning tired.  Mind you, I had only fallen asleep four hours before.  It’s a hazy morning, humid but tolerable with an intermittent breeze. I’m annoyed. Why? Because I’m tired, because it’s humid, because my mood took a slight dip while I wasn’t paying attention.  My first thought: I suck.

It’s not an uncommon thought for many, even if worded differently.  It’s the thought that rises when you believe that there is something you could do but haven’t, or that you have done but shouldn’t, etc.  In this moment, I suck because I’m tired and feeling lazy due to the humidity.   I suck  because my joints and muscles ache and I would prefer not to move.

Of course, the reality is that I do not suck.  Actually, I’m quite a lovely person, who tries her best at all times.  I just happen to have this type of response every now and again when it comes to dealing with my fibromyalgia.  It’s also a consequence of being perfectionistic.

So, how will I get myself out of this funk?  And how can you?  Well, I’m giving myself the proverbial reality check.  There are somethings that are within my control and beyond my control, including my body, my environment and the weather. What’s the point of beating myself up? There is none.

Putting myself down is a slippery slope that leads only to lowered self-esteem—and I’m not about that life.  The life that I’m about is one that lifts and heals the spirit, the body, and the mind.  I’m working on transforming that I suck statement into something more self-empowering, but first I have to confront with what’s really going on, take stock of my reality, and take action to improve my day.  I hope you will too! 🙂

In the meanwhile, check out this great personal article by analyst and professor Jane Boylton, Psy.D., M.F.T., “How Reality Checking Can Save Your Life & Your Dreams: You Can Easily Avoid One Sure Way to Suffer”  (PsychologyToday)

 

Until Tomorrow,

D.

Fibromyalgia & The Loudness of Absence: 3 Steps to Be More Present In Your Life

don_t-be-a-slave-to-writer_s-blockI think one of the scariest aspects of having fibromyalgia is the loss of control over the one thing that, if nothing else, you “should” have total control: your body.

It’s as though the bargain that you struck with your body once you left childhood suddenly becomes null and void. It’s like you left the car dealership and get home realizing you’ve been sold a lemon.  All right, maybe it’s not like that, but you get the idea. Something feels very unfair about all of this–and it’s true.

Fibromyalgia, like any illness, doesn’t do fair.  It doesn’t know how to play nice, and it’s quite selfish.  That’s the way it is.  Still, you have to live with it.  No matter how much it takes away from you. In fact, it can (and will) take so much away from you that you no longer know/understand who you are.

Fibromyalgia assumes and consumes your identity until you no longer exist.  I know. I’ve lived through it. I became absent in my life and from myself.  I allowed fibromyalgia to define me. Not. Any. More.

It’s easy to get bogged down in the misery of this illness: its randomness, its painfulness, its isolation, its depression.  The desire to withdraw from self and society can feel overwhelming, and I know many (including myself) who have retreated, in one way or another, from the world. Let’s stop that.  Let’s take back what is rightfully ours, Let’s reclaim our bodies and our minds!

It’s only a matter of taking it one step at a time.  So, today I’m sharing with you the 3 steps that I have taken and still take to be more present in my life.

  1. Remain Opento yourself and to possibilities that life has to offer.  Fibromyalgia changes you.  Be open to that change, rather than fear it.  There is a lot that having fibromyalgia will teach you about what it means to be alive.
  2.  Challenge Yourself Daily – Think fibromyalgia has made you into a sniveling, whiny, hell-hole of a person?  All right, well, that was yesterday.  Who do you want to be today?  Challenge yourself to be a better version who you were. Tomorrow is a whole other day, so focus on today, the here and now.
  3. Make Contact – No matter what, reach out to someone every day.  Call or meet a friend, check in with family, chat on an online support group or a social media network.  Reach out. Staying isolated with your illness is a sure path to further problems, psychologically and thus physically.  If you can, get outside and take a walk…even if it is for a few steps.  Taste the air outside, see the world around you, celebrate that life is happening and you’re a part of it.

I cannot promise you that taking only these 3 steps will change your life. They are, however, a good way to start doing so.  Remember there is a difference between the verbs to have and to be.

You have fibromyalgia. You are not fibromyalgia.

Let neither yourself nor anyone else define you by it.

Try every day, taking one step at a time along your path.

Until Tomorrow,

D.

Fibromyalgia & the Perfectionist: 3 Steps to Being a Perfectly Imperfect-Perfect You

Image from GIS

Image from GIS

The title is a tongue twister.  I dare you to say it fast 7 times. 

What happens when a perfectionist develops fibromyalgia? Well, I’ve spent the past 8 years learning the answer.

I don’t often speak or write about being a perfectionist. In fact, embracing imperfection, especially when it comes to body image and fibromyalgia, is often at the core of my blog posts, including this one.  The topic, however, has been on my mind over the past month as I transition from being a student to being gainfully employed. 😉

So, what have I learned over the past 8 years? Well, I won’t summarize it in this post.  One day , however, I’ll probably write a book about it…the subject feels that heavy.  For today, I wanted to share with you 3 steps that I’ve taken to being perfect at being imperfectly perfect.

3 Steps to Being a Perfectly Imperfect-Perfect You

  1. Chuck the Planner–Literally. Toss that thing in the trashcan…but do it perfectly.  Instead, invest in notepads and write anything you need to do for the next day/moment/whatever and stick the note somewhere you are likely to see it and, thus, remember, e.g. on your computer, mirror, refrigerator, front door, whatever. Just make sure you find the perfect spot for them.
  2. Downsize Your Goals–Thinking about hiking Mt. Everest tomorrow? Well, how about downsizing that to hiking your local trail today? What I mean is, focus your thoughts on doing what you can right now, in this very minute.  I know that my perfectionism has been both a great help and a massive hindrance to achieving goals.  Of course, I still have goals.  However, I have modified them by breaking them down (mentally) into smaller achievable steps.  Also…I now focus on enjoying the process instead of the product.
  3. Ignore Everyone–Meaning, ignore their opinions.  If there is one thing I know about being a perfectionist is that the opinion of others really mattered to me. I would choose to do something or not based upon how others would respond. Of course, this can be a good thing…but it can also be very detrimental, especially if you are creative–what is it that you haven’t painted, written, played, done etc. because you fear the response of others?   Well, right now, this very second, is the time to say enough is enough and pick up that paintbrush, pen, sheet music, etc. and do what you want to do.

Bonus Tip: Learn to listen to your thoughts, feel your feelings, heed your body, embrace your resilient spirit.  You won’t be perfect at first, and you will be judged (don’t worry…they’re not perfect either). However,  if you keep working on it, you will become a perfectly imperfect-perfect you.

Hey, this life is in this moment. How do you want to spend it?

Looking for more on letting go of perfectionism? Read this.

Until Tomorrow,

D.

FMS | The Necessity of Positive Self-Value

DSC001732Just a quick thought for today.

Remember that taking care of yourself, recognizing your strengths, working on your weakness, celebrating your small steps (and big ones) are necessary part of maintaining positive self-value.

It’s easy to get caught up in the what you can’t do or the  what you should do, instead of looking at what you have done and what you want to do.

Take a moment before the end of this day to check in with yourself.  Challenge yourself to acknowledging your positives, and then see how those positives can be extended to touch the lives those around you.

Until Tomorrow,

Courage to Stand Still: Why Doing Nothing Might Just Be the Best Plan

Found via Google image search.

Found via Google image search.

As a recent graduate (and even in the months before, there was one question that many people wanted me to answer:  So, what are your plans?  Or the other variation: So, what are you going to do now? Or there is also this one: So, what’s next?

I don’t know about anyone else, but for me those questions act like an unintentional stranglehold. It’s as though having completed full-time studies for the past 3+ years while trying to work and dealing with my chronic illness wasn’t enough.  It’s as though stopping to take in life for moment is unacceptable.  We must know what were going to do next, achieve next, be next.

Well, heck, what about just being able to be where we are right now? How about just being who we are right now? Celebrating that and nothing else. I know it’s not the fault of those who have asked the question.  Many of us are trained to think in this manner, i.e. we are only as good as our next potential achievement.

In my opinion, these types of questions can cause anyone in transition to take on that deer caught in headlights look. Seriously.

Surely enough, there are many who already have answer, who are ready for the question because they’ve had enough training to know that they “should” have a plan for the next step.  There’s nothing wrong with that.  Actually, kudos to them for having a plan.

For me, what I’ve learned over the past several years is that planning (and over-planning) about the future is sometimes not the answer.  Yes, have plans, have goals, have ideas about the future. However, stand still for a moment and be with the present.

Living in the now, without focusing on what is come next, can be very useful. It can help you to appreciate where you have been, who you have become, why you are, how you came to be.  No, I’m not trying to get existential on you.  It’s just the reality that we really ought to take a time out just for ourselves.

Have the courage to say “I don’t know.” when asked about the future, even if you do have plans; or use my personal favourite: I’m not there yet, but once I am, I’ll let you know.

Happy Wednesday!

Until tomorrow,

D.

Is Your Family Narcissistic? 12 Ways to Know (PsychologyToday.com)

Read: “The Narcissistic Family Tree” by Karyl McBride, Ph.D.

Does your family…

  1. Keep Secrets (Never air your dirty laundry.)
  2. Focus on Image. (What would other people think?)
  3. Give You Negative Messages.  (You’ll never be good enough.)
  4. Lack of Parental Hierarchy.  (You are made to parent, become the emotional support for your parents, etc.)
  5. Lack of Emotional Tune-In. (Parents have told you that they don’t need you or don’t care what happens to you, etc.)
  6. Lack of Effective Communication.  (Triangulation/Gossping, see last post).
  7. Have Unclear Boundaries. (Personal space invaded. Perhaps even identity stolen, literally and figuratively.)
  8. Have One Parent Narcissistic, the Other Orbiting. (Leaving children with no other source of support)
  9. Discourage Siblings From Being Close. (Does it feel like your siblings are in a constant competition with you or between themselves?)
  10. Negate/Displace Feelings. (What feelings? Who has them? Why are they necessary? J/k…but this is what it’s like).
  11. Give You “Not Good Enough” Messages. (Whether spoken or unspoken, you learned that there was/is/will be a way to match the ideal that your parent already is.)
  12. Thrive on Dysfunction—Obvious or Covert. (Was emotional, physical, sexual abuse a regular part of your life…but no one seemed to know it…even your own siblings?)