Why I changed my life. (Fibromyalgia)

Photo by Nandhu Kumar on Pexels.com

Eleven years ago, in 2011, I began this blog to document a new phase of the journey of my life. To be honest, the new phase started in 2008 when I was first diagnosed with fibromyalgia. In 2010, I made a significant decision, the kind that is not easily reversible. I decided to walk towards the unknown. I decided to step within and uncover or discover a different way to live.

Flying to…

Certainly, walking towards also means walking away from. I left behind a life I worked hard to create and tried to live. The reality, however, was that life threw me curveball in the form of fibromyalgia. Back then, I had many reasonable feelings and perhaps some unreasonable thoughts about developing this chronic illness.  

My feelings ran the gamut, from anger to fear to sadness to happiness (after all, life can always be worse). My thoughts were both pratical (how can I survive like this?) and seemingly impractical (how can I move to Italy?).

Only two things were certain: the present could no longer exist, and whatever future I have, I would need to trust to instinct and chance because I could not trust my body to function as usual. I needed to learn to accept that I was no longer who I once knew myself to be.

New Cover Art for YouTube. Click to Visit Vlog: Rome Off the Beaten Path.

You may be wondering why I decided to write about this topic today. Recently, a friend told me that they were asked by someone else, “So, why did Diedré leave her previous line of work (considering the renown of the hospital)?” It made me realize that it may be difficult for others to understand my path.

Sometimes in life your life may seem ideal to others. They may think, “You have everything I would like.” This way of thinking is not inherently wrong. It is merely uninformed. We cannot fully know or understand the intricacies of anyone’s life. It is enough to take on the challenge of knowing and understanding our own.

Ajigaura Beach, Hitachinaka, Ibaraki, Japan

So, why did I decide to go towards the within to the unknown parts of myself? Because I needed to find a new way to live, to understand myself, and I am naturally curious about the world around me.

Thirteen years ago, I sat in a fibromyalgia group support meeting. I was the youngest member of the group, by about 10 years. Listening to the group members, I learned how much fibromyalgia had changed their lives… for the worse. They could no longer work, had difficulties with daily functioning, were angry, sad, and frustrated with the hand that life dealt them.

I didn’t see their path as mine. I decided to find a different way, even if others may not understand it.

Hitachi Seaside Park, Hitachinaka

I am now in same age range of those fibromyalgia group members. Over the past decade, I have travelled quite a bit, studied, and am now working full-time. It is a very simple life that I have crafted based on my abilities and health.

I don’t know how life would have been if I had continued on my original path. I do know that the path I chose has led me to learn more about the world and myself.

If nothing else in life, know this: only you can live your life, and only you can change your path.

Until next time.またね(⁠^⁠^⁠)

Black History Month | Event: “Lift Every Voice” (Feb. 27th, 6PM CET)

Image by John Cabot University

I am honoured to have been asked to participate in John Cabot University’s Black History Month 2021 celebration. Many sincere thanks to Alexandria J. Maloney for inviting me to join her esteemed panelists in this discussion on our experiences living and studying in Rome.

Please, join our discussion . You can register by using the following link: Event Registration.

Almost 4 Years…

View from Dragon Bridge, Ibaraki

My journey to Japan began with an article about a spiritual journey in Buddhist monastery and a simple thought, “I would like to go there one day.” That moment was more than a decade ago.

I imagined undertaking a spiritual journey, one filled with lots of meditation and healing. You know the kind of thing: walking barefooted, kneeling, praying, and contemplating nature–all to a soundtrack of singing bowls, bird calls,

wand chanting. That sort of idealized version of a contemplative and peaceful existence.

Suffice to say that that hasn’t been quite the experience.

Tori in Kashima Shrine, Ibaraki Prefecture

Certainly, I am a regular visitor to local shrines. I wander the wooded areas near me, sometimes I hike mountains. I contemplate the beauty of nature and the tranquility it gives me. Still, I have yet to sequester myself in a monastery, although I yearn to do so.

How I got here and what I am doing to remain here doesn’t really matter. The why of being here is something that is evolving. The point is… I am here.

Cafe Zenzen, a favourite space, Ibaraki

I am here in a place where difference is suspect, being exactly who I am can lead to repercussions, and I am learning that I desire, above all else, that I yearn for stability.

However, living in Japan has influenced me to become more pragmatic.

My idealized version of living in a monastery in the mountains of Japan morphed into one of learning about the people, culture, language, and the importance of practical and sustainable living.

First Ohara School ikebana certificate, 2020

So, it’s been almost four years… I have no idea what will come next. However, I am open to who I will become.

This year, I finally realized (perhaps owned) that the journey that matters the most to me is learning to be a better human being. Specific place or profession matters only to inform my larger goal: understanding that I, too, can be good and do good in the world around me.

How about you? Where has your journey taken you? Where do you want to go next?

Until…

Vlog | Mini Life Update & Get To Know Me (30 Questions)

 

It’s been ages since I’ve posted a vlog on YouTube. Today, I decided to change that. 🙂

Reflection | From up high…

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View from Keisoku Mountain, Japan, March 2018

Many things seem so small, especially problems.

Every couple of months, I find myself standing on top of a mountain somewhere in Japan. Each step upwards feels like torture…and an accomplishment.  I look toward my fellow climbers in awe, at their speed and the seeming ease with which they climb. Of course, I don’t know what their experiences are–they could be suffering as much as I am. The climbing could be a testimony for each one of us that we are alive and still trying.

Recently, I’ve been reflecting on the past decade of my life. At this moment in 2008, I was planning a wedding and preparing for a future that certainly isn’t the one I’m living now. By this time in 2009, I was dreaming of living in the house that I would eventually call home before the year’s end. In 2010, I had lost 80 pounds, was trying to save my dying marriage, and by Thanksgiving, was mourning the death of my beloved pet.

The end of March 2011 found me preparing for my third visit to Rome, trying to figure out how to live life as a single and mostly jobless person. I was still dreaming–this time, of living in Rome. By 2012, I was a full-time undergraduate, living, studying and working in Rome. The following 4 years were marked by a series of avoidable and unavoidable events, all of which left me pretty broken but with a good deal of insight.

By the end of March 2016, I had been living in the U.S. full-time for 6 months. I had gained back half the weight that I’d lost, was in the throes of a serious depression, and living in a highly psychologically toxic environment. Something had to give–I had fallen to my lowest point.

When you’re at the bottom, seeing or even imagining the top can be difficult.

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Keisoku Mountain, Japan, March 2018

 

 

I couldn’t see up or even imagine what life could be like beyond what I was experiencing at that time. However, I knew that there had to be some other kind of life for me.

Where I was, how I was, who I was, and what I was doing…was not my final destination.

I didn’t know if I could ever be happy. I didn’t know where I could go or even what I would be capable of doing. I just knew that I no longer wanted to be a participant in prolonging my circumstances.

I had to take a step forward and upward, even the smallest one. And so I did.

On Friday, March 17, 2017, I began a new journey. I boarded a flight to Japan, a country I’d never been to before. I didn’t speak the language and knew very little about the culture. Still, I knew that I had to take the chance, to give myself the opportunity to change, to begin climbing out of the deepest hole that I’d ever stumbled into.

When you’re climbing a mountain, you have to use both your hands and feet. 

Now, it’s Friday, March 30, 2018, and I’m sitting in a Starbucks somewhere north of Tokyo. My partner is working on her laptop, and I’m listening to The War on Drug’s “Pain.”  I haven’t reached the top of my mountain. Still, I am no longer at the very bottom. It’s a start, and that’s always the hardest part when you’re climbing–at least, for me. There are times when it feels like I can’t catch my breath, like my feet won’t take another step, like my hands won’t support me as I reach upwards. Still, I try.

That’s what I’ve learned over the past decade. All you can do is try and never give up. Every problem is a mountain. Tackling each one means getting to the top. Getting there, however, means looking ahead, taking each step carefully, being prepared to use whatever means necessary to secure yourself…and definitely having those who care about you by your side.

Until Next Time,

D.

 

Reconnecting

own-sunshine

Another grey summer day in Japan and life continues on. I wake up to a wall of clouds outside my window, the sounds of money being earned with each passing car, and the hazy whispers of my partner. It’s barely 6 AM.

I consider 24 hours earlier: I was standing in her apartment, face unwashed, clothes disheveled, emergency backpack straddling one shoulder, and wondering if this was our last moment together–North Korea had launched a missile towards the north of Japan.

A few months earlier, I arrived in Japan with a baseline plan of refocusing myself, laying the groundwork for accomplishing future goals, surviving earthquakes, and embracing the unknown.

This morning I am content with waking to a winter-like sky, watching my partner eat leftovers for breakfast while taking pleasurable sips of a Starbucks’ soy green tea (matcha) latte, smelling burning sandalwood incense, listening to passing cars and The Last Word with Lawrence O’Donnell on YouTube, and wondering and planning what else the future holds.

I am moving forward with writing, with loving, with being loved, with enjoying the simplest aspects of life while appreciating how complex life can be. For now, I’ll return to daily blogging, sharing my thoughts about life in Japan, how I’m managing my fibromyalgia, and whatever else that comes my way.

Until Next Time,

D.

 

 

25 May| Reminder! Faculty Reading and Welcome Party at JCU! — JCU // Creative Writing Workshop

Join us tomorrow for the Institute of Creative Writing and Literary Translation‘s faculty reading and welcome party. Hear the latest works from our professors: Elizabeth Geoghegan (pictured above), George Minot, Michael Carroll, Elena Buia Rutt, Mike Traenor and David Keplinger. The event will be held on the Secchia Terrace in JCU’s Guarini Campus from 6:30 PM […]

via 25 May| Reminder! Faculty Reading and Welcome Party at JCU! — JCU // Creative Writing Workshop

30 May |Women Writers & The Art of the Short Story: A Tribute to Lucia Berlin — JCU // Creative Writing Workshop

Join us on Monday, May 30th (Memorial Day), in celebrating the life and work of author Lucia Berlin (1936-2004). This event will feature JCU professor Elizabeth Geoghegan, Italian screen and fiction writers Chiara Barzini and Francesca Marciano. Event will be held from 6:30 p.m. to 8:00 p.m. in Room G.G.1 in JCU’s Guarini Gampus. Click here […]

via 30 May |Women Writers & The Art of the Short Story: A Tribute to Lucia Berlin — JCU // Creative Writing Workshop

2 Laptops, a Button-less Phone & That Thing About Traveling

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Image found on Rebloggy.com

I don’t know where in the world you are, but where I am

it’s Monday,

14:07,

somewhere around

90 degrees (Fahrenheit),

and boring as all heck.

I’m trying to console myself because my Words with Friends-designated laptop is in the remote hands of some person very far away in some office belonging to Microsoft, who is trying to fix my operating system.

It’s no good, this.

I’ve not had much else but peanut butter and ginger ale today, and I keep thinking I should eat something, but my laptop being remotely controlled is keeping me fixed to one spot.

Life ought not to be this boring:

watching a “Downloading installation file: Feel free to keep using your PC.”

Twirl-twirl-circularly moving dotted thingy…

I’m at 15% complete with an

Estimated time: 2 hr 27 min 12 sec

2 hr 25 min  7 sec

away from being able to move from this spot.

Every now and again, I pretend to be “with it” (do people still use with it?) and “slide” the “buttons” the phone my mom made me get because she was embarrassed by my Verizon flip-phone from 2013. Now, I’m Boost Mobilin’ and tweetin’ (not really).

19% complete and

I’m wondering if using my other laptop means that I’m having an affair.

At 24%, I feel almost a quarter way decent about my position in life,

sitting on a bed,

sweat collecting to drip,

my wanderlust has taken control of my mind and prompting my feet to move.

How far do I want to go in

2 hr 11 min 30 sec?

Maybe Newark International Airport,

but then I wouldn’t come back here for a while.

That’s the thing about being nomadic, you see.

Opening the front door means that there’s another

awaiting you somewhere.

But at 30%,

I’m not even a third way complete.

How fast, I wonder.

How much faster must I travel within

to have the freedom to live without

the burden of time and place.

1 hr 56 min 17 sec.

-db

 

ART: Just put one foot in front of the other.

fdb6bf41ace6004aef23b7c67553d766A young friend of mine sent her passport renewal paperwork yesterday. While that, in itself, is interesting, what interested me most was she said afterwards: “I wish I could move that quickly about everything that I want to accomplish.”

And, indeed, she had moved quickly. In fact, it took her only a day, from the time we first spoke about renewing her passport, to complete the paperwork, acquire the $100 renewal fee, and to mail it all.

You see, she wants to travel. Her desire to travel to accomplish what can be seen as a rather tedious task.

Although travel is appealing in many ways, it was not the key factor in her choosing to act quickly.  The key factor was her desire. Her feeling of wanting something caused her to take the steps towards achieving it. It’s a no-brainer, right?

Well, maybe not.

Many of us live our lives doing what we believe is expected of us and never question why we are doing what we do. As we get older, we begin to cast aside dreams, disregard opportunities for change and play into the notion that whatever we are, that is what we were meant to be.  In essence, we lose our desire for living outside the confines of societal and familial expectations.  Whatever curiosity and passion we held in our childhood, adolescence and young adulthood become seemingly spent, used up by the rationality of being a grown-up.  Then we spend our time lecturing those who are younger on how  not to end up like us, but to make sure that they live within societal norms while giving up on fantasies (a.k.a dreams).

Of course, this is not applicable to everyone. However, a good number of us seem to operate in this manner.  We seem to work to cancel out possibilities of younger people living extraordinary lives.

“I wish I could move that quickly about everything that I want to accomplish.”  In this one statement, my friend revealed that

  • 1) there are things she wants to accomplish, but has little motivation so to do, and
  • 2) when there is something she really wants to do, she accomplishes it quickly.

Well, the answer to her problem becomes simple: she must figure out the things she really wants to do in her life, rather than trying to accomplish what she believes she should.

Knowing what you really want out of life, what you are truly passionate about (even if it is challenging or lacks impressive financial rewards), what moves you to positive action (not reaction), what moves you to constantly evolve can only lead you to live a life full of meaning.

So, what was my response to my young friend’s statement? “Well, just do as you did with your passport.”

  • Acknowledge what you want,
  • Research the steps you need to take to accomplish it, and
  • Take the first step, and then the second, and the third, etc., until you get to where you want to go.

Living a meaningful life is truly a work of ART.

So, start painting your dreams into reality.

Until Next Time,

D.