Why I changed my life. (Fibromyalgia)

Photo by Nandhu Kumar on Pexels.com

Eleven years ago, in 2011, I began this blog to document a new phase of the journey of my life. To be honest, the new phase started in 2008 when I was first diagnosed with fibromyalgia. In 2010, I made a significant decision, the kind that is not easily reversible. I decided to walk towards the unknown. I decided to step within and uncover or discover a different way to live.

Flying to…

Certainly, walking towards also means walking away from. I left behind a life I worked hard to create and tried to live. The reality, however, was that life threw me curveball in the form of fibromyalgia. Back then, I had many reasonable feelings and perhaps some unreasonable thoughts about developing this chronic illness.  

My feelings ran the gamut, from anger to fear to sadness to happiness (after all, life can always be worse). My thoughts were both pratical (how can I survive like this?) and seemingly impractical (how can I move to Italy?).

Only two things were certain: the present could no longer exist, and whatever future I have, I would need to trust to instinct and chance because I could not trust my body to function as usual. I needed to learn to accept that I was no longer who I once knew myself to be.

New Cover Art for YouTube. Click to Visit Vlog: Rome Off the Beaten Path.

You may be wondering why I decided to write about this topic today. Recently, a friend told me that they were asked by someone else, “So, why did Diedré leave her previous line of work (considering the renown of the hospital)?” It made me realize that it may be difficult for others to understand my path.

Sometimes in life your life may seem ideal to others. They may think, “You have everything I would like.” This way of thinking is not inherently wrong. It is merely uninformed. We cannot fully know or understand the intricacies of anyone’s life. It is enough to take on the challenge of knowing and understanding our own.

Ajigaura Beach, Hitachinaka, Ibaraki, Japan

So, why did I decide to go towards the within to the unknown parts of myself? Because I needed to find a new way to live, to understand myself, and I am naturally curious about the world around me.

Thirteen years ago, I sat in a fibromyalgia group support meeting. I was the youngest member of the group, by about 10 years. Listening to the group members, I learned how much fibromyalgia had changed their lives… for the worse. They could no longer work, had difficulties with daily functioning, were angry, sad, and frustrated with the hand that life dealt them.

I didn’t see their path as mine. I decided to find a different way, even if others may not understand it.

Hitachi Seaside Park, Hitachinaka

I am now in same age range of those fibromyalgia group members. Over the past decade, I have travelled quite a bit, studied, and am now working full-time. It is a very simple life that I have crafted based on my abilities and health.

I don’t know how life would have been if I had continued on my original path. I do know that the path I chose has led me to learn more about the world and myself.

If nothing else in life, know this: only you can live your life, and only you can change your path.

Until next time.またね(⁠^⁠^⁠)

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s