FMS | Fibromyalgia is Not the Enemy. Your Attitude Is.

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This is what we need to aim for every. single. day.

Beyond medical research, I spend a lot of time reading personal stories of people who have fibromyalgia.  After all, I have the illness, and it feels good to have a sense of belonging. However, there is a problem.

What I’ve noticed is that many of these stories, including some of my own, focus on the (for lack of a better word) negative aspects of the illness.  There is nothing wrong with that. Of course, we all need a place to share our grievances, our challenges, and our pain.  This can help those without fibromyalgia understand a bit more about our experiences with the illness.  Sharing, however, the negative of our illness is not always helpful…to us.

What I mean is: isn’t it about time that we share the positive? Share our successes?  If nothing else, in both my personal and professional lives, I learned that focusing on what works helps us to feel better about ourselves and our circumstances.  (Also, reading about the success of others in overcoming their challenges is helpful to those who are struggling.)

For example, let’s say you’ve been waking up every morning (if you even slept) and have felt so tired that the idea of getting up is too much.  Okay, that’s fine. Now, instead of focusing on feeling so tired, how about focusing on the simple pleasure of I woke up today. Perhaps that may seem a bit morbid.

The reality is, however, that if we can take a moment to focus on what is good/positive/working, then what is bad/negative/broken begins to matter less.

So, to give you a boost, I thought I would share with you my 5 steps to feeling motivated for each fibromyalgia day:

  1. Appreciate. Every morning and for the rest of my day, I take moments to simply express gratitude for the simple things in life, whether internally or externally or both. The sun is shining. I am breathing. The birds are singing, etc.
  2. Celebrate. Even if I am stuck in bed all day long, I celebrate myself and my achievements for the day.  Perhaps the only achievement I can point to is my self-care, i.e. not pushing myself beyond my limit and not beating myself up because I can’t do what others can.
  3. Life-dream. Okay, so it’s a rough day today, but guess what? Tomorrow might just be better, and what do you want to do? I take time to make small and big plans for my future. I keep in mind something that YouTuber CharlyCheer expressed in one of her videos: if you can spend 10 minutes today working on a goal, then you are that much closer to achieving it.  So, dream and dream BIG.
  4. One-step.  I take the foot-in-the-doordoor-in-the-face compliance strategies. What does that mean? I negotiate with myself. I ask myself to do something either so small (foot in the door) that I know I can do it, or I ask myself for something so grand that I know I will reject in favour of something smaller. In essence, I force myself into complying with taking a positive action.  What the video below.
  5. Laugh. I spend a great deal of time laughing.  Sometimes it is because of something I make myself watch (cartoons, comedies, etc.), sometimes it’s a memory of something I did (I can be very clumsy), or sometimes it’s listening to or reading something funny (whimsical music, comic strips, joke books, etc.).  The point is, I force myself to experience a positive emotion. Check out DBT technique  Opposite to Emotion Action.

You know, having fibromyalgia does not have to suck.  It’s true sometimes it does, and when it does…man, well…you get the idea.  Fibromyalgia is just an illness. It’s not the bogeyman, nor the devil or some demon meant to torment you.  It’s nothing to really be sad about, in my opinion.

Yes, your life has changed.  However, focus on how you can compensate for those changes/challenges.  Make having fibromyalgia a positive for you.  When people say, “I’m so sorry you have fibromyalgia” (I hear this a lot), respond with “I’m not! It’s one of the best things that has happened to me and has helped me change my perspectives on life!”

And that’s the truth. Fibromyalgia does teach you many wonderful things about life, especially because it forces you to slow down, to pay attention, and to take care.

Until Tomorrow,

D.

 

Is Your Family Narcissistic? 12 Ways to Know (PsychologyToday.com)

Read: “The Narcissistic Family Tree” by Karyl McBride, Ph.D.

Does your family…

  1. Keep Secrets (Never air your dirty laundry.)
  2. Focus on Image. (What would other people think?)
  3. Give You Negative Messages.  (You’ll never be good enough.)
  4. Lack of Parental Hierarchy.  (You are made to parent, become the emotional support for your parents, etc.)
  5. Lack of Emotional Tune-In. (Parents have told you that they don’t need you or don’t care what happens to you, etc.)
  6. Lack of Effective Communication.  (Triangulation/Gossping, see last post).
  7. Have Unclear Boundaries. (Personal space invaded. Perhaps even identity stolen, literally and figuratively.)
  8. Have One Parent Narcissistic, the Other Orbiting. (Leaving children with no other source of support)
  9. Discourage Siblings From Being Close. (Does it feel like your siblings are in a constant competition with you or between themselves?)
  10. Negate/Displace Feelings. (What feelings? Who has them? Why are they necessary? J/k…but this is what it’s like).
  11. Give You “Not Good Enough” Messages. (Whether spoken or unspoken, you learned that there was/is/will be a way to match the ideal that your parent already is.)
  12. Thrive on Dysfunction—Obvious or Covert. (Was emotional, physical, sexual abuse a regular part of your life…but no one seemed to know it…even your own siblings?)

Triangulation: Don’t be a flying monkey…

Self-portrait: Today. (May, 2015)

Self-portrait: Today. (May, 2015)

Somehow I missed the fact that April was National Child Abuse Awareness and Prevention Month in the US–do they even have such a thing in Italy? I ought to find out.

As I prepare to return the US next week, especially to my family’s home, I have been reflecting on family and communication.  To be specific, I have been trying to strategize a method to deal with pervasive triangulation.

What is triangulation? Simply put, it is a method of communication that is passive-aggressive, such that information is rarely stated directly between the two (or more) people involved . In a real life family situation, it would sound something like this:

Sister: “So, I heard from Mom that you took her car without asking. Didn’t you know that she would be upset?”

Brother: “Well, I heard from Dad that Mom told him that you didn’t do well on your last exam and that you’re just a failure waiting to happen.”

In other words, information that should be stated directly from “Mom” and “Dad” to the “Sister” and “Brother” is instead being communicated just between the siblings. Neither Mom nor Dad state their (negative) feelings to their children, rather they have the children do it for them, which in turn tends to create disharmony between the siblings.

This method of communication is standard in families where narcissistic tendencies feature actively in either (or both) parent.  Triangulation serves to control communication, foster distrust between siblings, continue drama and undermine self-esteem.  The idea that parents can be trusted to maintain privacy is annihilated, and a lesson is learned that information is a useful weapon.

I’ve experienced three decades of this type of communication…enough to know that there is only one person who benefits from it: the parent(s) with narcissistic traits/tendencies/personalities.

Approximately 10 years ago, I decided not to get involved in it anymore.  When family members approached me to listened to “what so and so did,” I declined the conversation and redirected the person to speak directly with that person instead of me. I have no interest in being a flying monkey for anyone.

What pray tell is a flying monkey?  Well, let’s do it this way:

You know you’re a flying monkey if…

  • You listen to gossip about others and then spread it (usually from a family member about another family member).
  • You take up arguments on the behalf of someone (usually a family member).
  • You bully others on the behalf of someone (usually a family member).
  • You feel a sense of belonging when you gossip/argue/bully others for someone.
  • You take an intense interest in keeping tabs (spying) on the doings of others for someone, and then spend time gossiping about the “failings” of the people upon whom you have spied.
  • You are invasive. When visiting other people’s homes, you will go through their belongings and then report back to someone about it, particularly focusing on what the home lacked.
  • You are inauthentic in your dealings with other people. You seek out information from them to share it with someone else…and you are more than likely to use it against them.

I could go on with this list, but let’s leave it here for now.

I imagine some people wouldn’t even know themselves if they stopped being flying monkeys or stopped using triangulation, etc. And not knowing yourself can be a very scary experience.  Still, if you are either instigator of triangulation or complicit by acting as a flying monkey and perpetuating this type of communication, please work to find another way.

It is possible to speak directly to someone about your feelings.  You don’t have to use others to do your bidding.  At least, know that you are choosing to triangulate, especially using your children or other family members, you are engaging in an emotionally abusive act.  Children, particularly, need to learn how to express their feelings in a direct way.  This type of communication breeds secret-keeping, low self-esteem, and a compromised ability to trust self and others.

It is possible to allow other people to do their own dirty work.  It’s not your job to speak on someone’s behalf (unless that person is a child and is somehow unable to speak).  It is never your job to engage in aggression for someone else.  Why should you? Why would you want to?

Just to wrap this up (finally), please, take a moment to consider your method of communication today. Do you triangulate? Or are you on the receiving end of it? Or do you foster it?

Until tomorrow,

D.

Vlog | My Vegan Munchies! Awesome YouTube Vlogger

Fruit stand, Venice (2015)

Fruit stand, Venice (2015). Click to visit My Vegan Munchies’ channel!

Thinking about going vegan? Worried that you can only eat lettuce? Frantically thinking about surviving living abroad while vegan?

Check out My Vegan Munchies‘ YouTube channel to learn great recipes to begin your vegan/vegetarian journey.  I’m super happy that I learned about her channel.  Other healthy living vloggers I love are CharlyCheer (health/travel) and Zipporah G (health/travel).

Well, Check out My Vegan Munchies Living Abroad While Vegan Video:

Daily Blogging & Writing Fearlessly

On Via Fori Imperiali

On Via Fori Imperiali (May 2015)

I’m almost certain that many writers spend time thinking about how to write more, why they aren’t writing more, when they can write more, if they should write more, if they can write more. I’m no exception.

Lately, I’ve been writing, but not publicly. I have an awful tendency to stop writing because I believe I have nothing of interest/importance to state–usually, that translates into “I feel like crap about myself in the world.”  I recognize that writing about true feelings/thoughts not filtered through psychobabble scares the living daylights out of me.  Seriously.

It is a scary thing just to write “I feel…” and not add something about Freud or CBT or DBT immediately before or after it.  What would it mean to simply state my feelings, my thoughts unfiltered, uninhibited in my own little virtual space?  Who knows. This, however, is the starting point.

It’s a promise to myself. Every morning, I will write something, anything on this little blog of mine. It may interest you. It may bore you to tears.  The point, however, is that I am writing what is honest/authentic/true for me. I hope you’ll continue to give me your support.

Also, I an starting a health journey daily vlog upon my return to the US.  It will run from May 25-August 15, and will be tracking my progress with taking better care of my overall (but mostly physical) health, including diet, exercise, hair, skin, etc. I am really ready to commit to a healthy vegan and natural lifestyle, and I would like to document that process. So, wish me good fortune on that as well.

Sometimes it’s when we are about to experience enormous change that we truly recognize the direction in which we are heading.

Until Tomorrow,

D.

How to be a ghost without really trying… (+ FibroArt Monday)

Photo Credit: Moyan Brenn via CC Flickr

 

Happy Monday! 🙂 (Hope your day& mine is pain-free)

I’ve been thinking a lot about my tendency towards silence.  Actually, let’s back that up, I’ve been thinking a lot about why I am as I am and how to change some core self-beliefs.  Seriously, ask yourself right now, Why am I me?

Some of us tell ourselves that we are too busy to think about such nonsense.  Some of us know that it would be better for us to think about it, but are afraid of what we might learn.  Some of us have asked the question, but have no answers. Some of us chuck ourselves into therapy, but with no intention finding answers, etc., etc.

You get the idea. It’s not an easy question either to consider or answer. Still, this is a question that I believe that we should try to answer throughout our lives.  This brings me back to my original statement about being silent.

Just over a week ago, I moved into the place where I’ll be staying until I leave Rome on the 21st.  My landlord is an amazing science fiction author, who reminds me of a cross between Bukowski and a much slimmer Santa Claus. Yesterday, he said to me, “So, is everything okay with you? I’ve not seen you for the past 10 days.”  Mind you, I’ve been at home.  Still, he was right. He hadn’t seen me.  I had made sure of that.  It wasn’t because I wanted to avoid him, but because disappearinghidingremaining unseen is second nature to me.  I erase my presence, even when actively in the lives of others, which may be related to my object permanence issues.  That, however, started way before the memories I can access.

What I do know is that growing up, my silence and lack of presence was something that was valued in my household. I did not stir the proverbial pot.   When I did try to express myself, I was often shutdown and compared with others who I understood had undesirable qualities.

In other words, I was encouraged not to share my thoughts, express my feelings, interact with the world around me, have friends, and generally be a socially-adapted member of society.  I’m lucky that I decided to become a therapist because I learned many of the interpersonal skills that I ought to have when I was younger.

Yet still, I have yet to unlearn that core household rule, which has become an unsettling self-belief: I must erase my presence.

And why must I erase my presence? The answer is rather simple, because the statement comes from my childhood thought: I should not speak or my family will hate me even more and I will have no home.

So, how do you undo the belief that being “present” in the lives of others means that you will lose whatever place you have?  Well, I have no definitive answer, but I’ll let you in on what I am doing.  😉

What I am doing is actively giving myself permission to:

  • Exist – I have the right to take up space on this planet, even if it means that others may be discomforted by that.
  • Speak – I have the right to speak my personal truth, even if it dispells the myths of others.
  • Love – I have the right to love and be loved just because I exist. My loving or being loved is not synonymous with my forfeiting my identity and goals in life.
  • Dream – I have the right to create goals for myself separate from the desires of others. I can dream as big or as small as I want to about my life.
  • Feel – I have the right to my physical and emotional experiences, even if they counter the needs of other people.  If I think the sun is freaking hot today, then it’s hot. If I am sad, then I am sad. It’s that simple. No one can dictate my feelings to me.
  • Be – I have the right to be whatever I am and whatever I am not.  It is my choice.

I could go on for a bit longer with the list, but there you have it. This is my first step.

Perhaps this may be helpful for someone else, especially if you grew up in a highly narcissistic family environment, or what I might call a house of non-self mirrors.

Take a look at yourself today. Smile at who you are, love who you are, acknowledge you are here and no matter what you have the right to be.

Until next time,

D. 

   

Vlog | Fibromyalgia & Travel: You Must Be Your Number 1!

Thank you so very much, everyone, for sticking with me both on my blog and on my YouTube channel! 🙂

FibroArt Mondays!

Pain within Me, by artist Amanda Zammit. Click to visit her WP blog!

Pain within Me, by artist Amanda Zammit. Click to visit her WP blog!

Amazing artist Amanda Zammit created the above piece titled Pain within Me for a loved one who has fibromyalgia and myalgic encephalomyelitis. Please, click either her name or the image above to visit her website.

Very Tiny….FibroArt Monday! (Yes, I am back)

Image via GIS. Click to visit related Pinterest site.

Image via GIS. Click to visit related Pinterest site.

I found this image via Google this morning and I thought it was perfect to describe my recent circumstances.  The past two weeks have been a rollercoaster, and I let the ball drop on my personal projects (blog/vlog).  Now that that ride is over, I’m excited to get back into the groove of things. 🙂

Vlog | “Wash & Go” for 4C Hair / Il “Wash & Go” per I Capelli Ricci Afro 4C

titleenglishI got it together to begin posting videos again.  This one is on the “Wash & Go” style.  I have made both an English version and an Italian version. 🙂

Although an easy go-to style, the “Wash & Go” isn’t one that I would recommend wearing often as it leads to knots/tangles.  The idea of the style is to be able to wash your hair, add some products, and get out the door.

In most cases, one of the main products used for this style is gel–I’m just not about that particular life.  So, I opted for KeraCare‘s Twist & Define Cream instead.  It worked well for my hair, and left my hair feeling soft.

For the washing portion of the “Wash & Go”, I used KeraCare’s Cleansing Cream (shampoo) and my usual Garnier Fructis conditioner Fall Fight.  As a leave-in, I used KeraCare’s aptly named Leave-In Conditioner.

KeraCare: Cleansing Cream, Leave-in Conditioner, and Twist & Define Cream. Click to visit their site.

KeraCare: Cleansing Cream, Leave-in Conditioner, and Twist & Define Cream. Click to visit their site.

Curious to see how my “Wash & Go” turned out?  Watch either video below! 🙂  And if you could, please visit my YouTube channel to like this video and subscribe!

Until Next Time!

D.

English Version

La Versione Italiana