Fibromyalgia | Its Impact on Body Image & How to Improve Yours

Photo by Alexander Krivitskiy on Pexels.com

Scale? Check. Tape measure? Check. I’ve got some basic tools for body assessment. Oh, I forgot…I have a full length mirror, too. Check. My eyes, armed with a pair of glasses, seem ready for the task of looking, with extreme subjectivity, at my physical self.

Body image. I’d like to spend time talking about my own today.

Over the past decade, there have been some studies done on body image and women with fibromyalgia. What the research shows is that women with fibromyalgia experience a disturbance in their body image due to how fibromyalgia negatively impacts “self-identity, mental function, activity limitations, healthcare experiences, and quality of life.”

First, however, what is body image? The National Eating Disorders Association (NEDA) defines body image as “how you see yourself when you look in the mirror or when you picture yourself in your mind.” This encompasses 1) what you believe about your appearance, 2) how you feel about your body overall, and 3) how you sense your physical experience of your body within space. The story that accompanies our perception stems from the messages we received in childhood about our body and the bodies of those around us. Body image, whether positive or negative, can change over time due to various factors. Body image isn’t static, it’s a journey that we are all on throughout our lives.

Given my background as an expressive therapist, specialized in the treatment of eating disorders, I have avoided discussing my body image journey. However, in light of the growing awareness and conversation about this topic, I would like to share some aspects of my experience.

The Journey

Prior to my diagnosis, my body image was more on the positive side of the spectrum. I saw my body as quite strong, flexible, and healthy, having spent the years prior devoted to weight training, yoga, and maintaining a fairly decent diet. My weight would have been considered on the higher end of my weight range for my height. However, I was not concerned about this due to my muscle to fat ratio. In essence, I perceived myself as a healthy 20-something-year-old with love for dancing as many days of the week as I could.

When I began feeling ill for the first time in 2006, I felt confused and tried to find answers. My weight began to steadily climb upwards while my body’s abilities began a downward spiral. By 2008, I could barely recognize myself in the mirror. My body was no longer fit and the scale showed a number that I could never have imagined at that time. More importantly, my body couldn’t do what I expected it to be able to do.

For the first time, as adult, I felt ashamed of my body…and at a lost as to what to do.

Photo by SHVETS production on Pexels.com

The immense daily pain was unreal and unwelcomed. The fatigue, however, was the thing that made life unbearable. In my mind, I thought I could push through the pain. However, if I couldn’t even get up to begin that process, then what was the point? Luckily, my resilience has always been high. I made a plan to take control. Unfortunately, my focus was solely on my weight, not on the impact that my illness was having on my mind. Furthermore, I didn’t considered the consequences that losing weight would have on my intrapersonal and interpersonal relationships.

I became vegan and began walking for an hour every day. Over a period of two years, I lost twice the amount of weight that I had gained. I removed the word strong from self-description and added weak. I felt weak, tired, and in pain. I was, however, not as heavy as before. However, the years spent with the scale as a companion had had a severe impact on my mind. In addition, when I looked in the mirror, I didn’t recognize myself. It didn’t help that, at that time, I was also in the midst of some major life changes (separation, resignation, moving abroad, etc.).

I made the one mistake that I knew better not to make: I thought, “I don’t have time right now. I’ll have to figure it out later.”

It took almost a decade, but later finally came.

I prioritized creating my new life in Italy, leaving the old life in Massachusetts behind, and disregarding the reality of my increasingly fragmented self. In essence, I didn’t want to deal…and so I didn’t. The alarm bells began sounding about 5 years later when I found myself living in America once again. My weight had dramatically increased once again due to poor self-management while living in a stressful environment. Still, I decided to take the old approach–focus on the weight gain and not the mind. It was easier to focus on that rather than unravel the chaos of my internal and external world. As such my weight went down then up and then down again, while my body image continued its descent to rock bottom.

When You Hit Rock Bottom: There is Only Up

Just over two years ago, I hit rock bottom in multiple areas of my life (with the exception of work). I became aware that I had been choosing a very toxic, self-sabotaging path. So, I decided to change one thing at a time, including my relationship with my body.

If you do a quick internet search on improving body image, you can find countless articles on what steps to take. From what I can see, most of the advice is on point and doable. They are effective, if you are in the mental space and emotionally regulated enough to do them consistently. Fibromyalgia, however, can leave your mental space feeling limited and your emotions seriously dysregulated. So much of your time is spent managing fatigue or pain or both…and trying to manage the emotions that arise as a result.

Once I made my decision to improve my body image, I started with only one thing in mind:

shifting my focus.

I shifted my focus to what my body can do in the moment (not yesterday or tomorrow, etc.)–just here and now. In addition, I created goals, answering the following question: what do I want my body to do?

I put away the scale. I returned my tape measure to my notions container, put a message of affirmation on my mirror. I realized that I had stopped looking at myself in the mirror. Now, I make it a point to look at myself twice a day in the mirror. This is done with curiosity and without judgement.

I decided to become friends with my body. It’s a pretty cool body that can do many things. I want to learn more about what it can do, what it likes, and what it needs. I have also started getting clothes that fit properly and feel good. I want to understand more about my body’s style preferences.

Most importantly, I am grateful to my body for its strength. Despite the high levels of stress, the ongoing pain, and staggering fatigue, my body keeps going. Thanks, body!

Improvement Tips

Beyond the many lists I have only two tips:

1) become curious about your body, and

2) become your body’s best friend.

We spend a lot of time within our minds instead time within our bodies. We try to use our minds to control our bodies. We may think that we have a problem with discipline, not exercising enough or eating too much. Well, how about just stopping to listen to our bodies? How about letting your body tell you what it needs? Maybe it needs more sleep, massage, acupuncture, stretching, or to go for a nice walk.

You won’t know until you to stop to listen to your body.

Can Black Women Have Negative Body Image?

“Black women don’t have the same body image problems as white women. They are proud of their bodies. Black men love big butts” – Tyra Banks

From article “Black women and weight: Relocating to the South helped one woman change her self-image and accept her body” on TheGrio.com. Click to read.

I came across the above quote while searching for “negative body image Black women” on Google. My first reaction: “What a load of crap!”  My second reaction: “Really, what utter nonsense.”

Certainly, women of different races/ethnicities/cultures may have different body image issues.  To go so far, however, as to imply that all Black women “are proud of their bodies” is to deny the reality of Black women and girls who struggle on a daily basis with body image issues that may ultimately lead to eating disorders as well as an utterly tanked self-esteem.

I get the point that Banks is trying to make, however.  She is reinforcing a stereotype that Black women are happy with their curves–it’s not a bad stereotype really.  Also, I’m a big fan of being happy with your body no matter its current state–simply work on where you need to go, whether that is up or down some notches on the scale.

On the other hand, this stereotype is one that can work to keep Black women from moving their bodies more and becoming healthier. After all, if we love our curves so much and our “big butts”, then what’s a few extra pounds or 30?

Actually, let’s back that up. Is Banks actually saying that black women “love big butts”?  Not really.  What she is saying is that “Black men love big butts.”  So, in essence, the comfort level that a Black woman feels with her own body is apparently in direct relation to the acceptance of Black men of her body proportions–WHAT?

Well, what if you’re a lesbian, or a feminist, or just a free thinker, or all three rolled up into one ball of fierce loveliness?  Also, why should Black women value their bodies based upon the desires of Black men?  In fact, why should any woman value her body based upon the desires of any man?

Perhaps my lesbian (homoflexible), feminist, free thinking self has just gotten this quote all wrong.  Still, it bothered me.  It bothered me because I was searching for information that would useful to Black women who are struggling with negative body image.

The reality is that It’s easy to find resources for non-Black women.  Absolutely. I know from experience that the majority of young women and girls who are in treatment for eating disorders are non-Black.

It’s not that negative body image does not exist for Black women.  It’s not that eating disorders have no place in a Black woman’s mindset.  It’s simply that it’s not openly discussed.  Anorexia, bulimia, and binge-eating disorder do not discriminate against Black women.

There is a stereotype that Black women are happy with their bodies in an unhealthy state.  There is a stereotype that Black women don’t care about what they put in their mouths.  There is a stereotype that Black women don’t suffer from eating disorders.

It’s time to clear up this mess. First, let’s do so by balancing the good of the stereotypes with the harsh reality that some Black women face. It’s no joke that the CDC lists heart disease as the number one killer of Black women. Let’s start speaking more mindfully and seeing each other as humans first, capable of both joy and suffering at our own hands.
Until Tomorrow (seriously)

D.

FMS | Make this Year a Body+ Fibromyalgia Year – Love Your Body.

Image from warriormindcoach.com. Click to visit.

Image from warriormindcoach.com. Click to visit.

If you have fibromyalgia (or perhaps any chronic illness really), sometimes it may feel like you are in a constant war with your body.  It doesn’t work the way you want it to.  Perhaps you feel that you can no longer trust your body and that it has betrayed you–I know I felt like this for a really long time.

Over the past year, I’ve worked hard to come to terms with my body and its capabilities.  I’ve come to realise that it’s not about what my body cannot do or can no longer do. It’s about what my body can do, and how I can change my thoughts and actions so that it can do more.

Having fibromyalgia has allowed me to slow my thoughts down to fall into step with my body.

Yes, I move slowly sometimes, and when I do I get the chance to see the world around me more. Yes, I am in pain sometimes, and when I am I get the chance to feel a heightened sense of empathy with those who are suffering around me.

There are many negative ways that you can spend time thinking about your illness. Still, who wants to live like that? 😉

I made a promise to myself that this year would be a body positive fibromyalgia year. Actually, every year from this point forward will be that.

I resolved to learn what are the positive ways that I can think about my illness…and its impact on my body.

So, love your body, embrace your illness, rebuild trust with your body and take one more step on your path to happiness.

D.

FMS | Please, Tell Me What I Can Eat….

Seriously. 😉

If you are like me and have been diagnosed with fibromyalgia as well as other comorbid illnesses, such as polycystic ovarian syndrome (PCOS), irritable bowel syndrome (IBS), Reynaud’s syndrome, then your relationship with food might be a complex one–and that probably is an understatement.

Eating the wrong foods or food combinations can mean more inflammation, pain, digestive issues, insomnia, fatigue, hair loss and gain (facial), decreased libido, mood swings, etc. And who wants more of that?

Especially, if you have comorbid diagnoses, you may find that the food recommended for one illness, may be discouraged for another illness. Sometimes it feels like a lose-lose battle.

Still, we must not despair. There is always a path to healthier and active living, if we choose to seek it.

For me, I live be a golden rule when it comes to living in my body.  I think of my body like any vehicle that I would drive. It is my personal vehicle, and so this rule applies:

Food is the Fuel

Exercise is the Engine

As long as the combination of those two factors is balanced, then I feel at peace with my choices. Whereas exercise may be limited to what my body can do at any given time and may not be a daily experience (although I try to make it so), food is something that I ought to consume daily for basic functioning and overall well-being.

However, food, the fuel that our bodies need to sustain us, is one aspect of self-care that can create havoc, for people with fibromyalgia, in our otherwise solid treatment plans.

Over the last six years, I have undertaken the task of discovering what foods my body can tolerate.  Perhaps this task is a leftover from my days as a personal trainer/fitness instructor or maybe it’s just that I want to feel the best I can every day. Whatever the case, I have been experimenting with foods in order to find a FMS+ plan that is nutritionally sound and interesting.

Here is what I’ve discovered about my body:

Foods it Likes

(Tolerates…because I can’t really say that I, personally, enjoy all of these foods):

  • Leafy Greens – Bring on the lettuce, cabbage, endive, etc.  I cannot express to you how much I detest endive…but I live in Italy and am a bit lazy with food preparation, so endive is bound to be present in the bagged salads that I buy.  Oh well.
  • Water – Natural. Okay, this may seem a bit strange, but it is my reality.  My body loves water in its most natural state, not effervescent (fizzy). There is little else beyond water that my body can handle as a liquid. It’s simply not on.
  • Fruits – The crunchy kinds.  Any kind of fruit that has a crunch to it, my body seems to appreciate more than fruits that could be considered juicy (or very ripened).  So, that leaves me with pears, nectarines, apples, etc. HOWEVER, I have learned that I can only eat these in moderation or, at least, rotate them out. I can also eat bananas, mangoes, susine gialle (I don’t know the English name), and grapefruits, but even more infrequently.
  • Nuts & Dried Fruits – Don’t get too excited.  I can eat two things from this category fairly often, but still I understand that I need to keep them in moderate amounts: peanuts & dried cranberries. That’s it. Sometimes, I can have almonds, but not as often.
  • Eggs –  Although I am not a fan, I can eat them and do.  I, however, rotate them in my diet, because I am not partial to the taste.
  • Seafood – Yes, I can eat seafood BUT not all. My body, for whatever reason, cannot handle frequent consumption of  certain fish, such as salmon and tuna.  Shellfish, however, gets a green light.
  • Yoghurt – Notice, I didn’t write milk.  I can eat all yoghurt (as far as I know).  I feel best, however, when I eat Greek yoghurt, which I eat frequently and often in combination with my nuts and dried fruits–it’s my little treat.
  • Gelato – Not often, but I can eat gelato.  I don’t know about ice-cream. Also, I have to stick with plain flavours. Ideally, the gelato should be gluten-free (gluten is sometimes used as a thickener).  So, nothing with cereals or candies, etc.

  • Chocolate (dark or white) – Again, not often, but I can eat chocolate every now and again.  Like gelato, should be ideally gluten-free and it cannot contain any kind of cereals and is best without dried fruits (which is often raisins, which I cannot eat).
  • Diet Soda Ideally, caffeine-free. Looking to spice things up liquid-wise?  Well, I can have diet soda fairly regularly, BUT because of my IBS, I understand that I need to limit my consumption.
  • Other vegetables – Mushrooms, olives, cucumbers, zucchini, garlic, onion, leeks, chives, scallions.  All of those get the green light.
  • Oils & other fats – I cook with olive oil. Period.  I do have butter in my refrigerator, but use it infrequently.
  • Seasonings – Well, most, as far as I know.  I tend not to season my foods, except with curry, black pepper, powdered/liquid garlic, rosemary, thyme or pimento.  And even these are used sparingly.

  • Gluten-free Products – WAIT…Please, don’t get excited, I can eat gluten-free cookies/biscuits…but not all, and it’s sort of a game of roulette.  I never know how my body will react to things.  Also, even though I have been able to eat these things, doesn’t mean that I think that it is good for me.  So, only when I am having a particular craving will I make the effort to purchase these.  They can also be great for making the crust of a low-carb/gluten-free cheesecake.
  • Cheeses – Apparently, I can whatever cheeses are available, but in severe moderation. 🙂 I am partial to softer cheeses, such as brie or cream cheese (which I use to make my low-carb/gluten-free cheesecake).
  • Fake Sugars – Yes, I can use them and do to add flavour to my cooking or sometimes to my water.  Fake sugars, however, are tricky and it is important to understand which ones work for you and which don’t.  My body, for example, cannot tolerate sugar alcohols in any form, whether as a sweetener or in the presence of a food (including gum and mint).

Okay, so those are the major (if not complete list of) items that I can eat.

—–

What I Choose Not To Eat…

The list of items that I ought not to eat is very long.  Notice that I write ought not to eat.

This is because I can eat them, but there will be repercussions.  As long as I am willing to accept the repercussions (major IBS symptoms, random/sudden weight gain, increased pain and fatigue, migraines, increased insomnia), then I’m good to go. 😉

So, what I do I choose not to eat?  Well, I’ll give you general categories:

I discovered how bad it was for me just the other day.  Recently, I bought a bag of gluten-free flour, thinking that I would make myself some awesome Jamaican boiled dumplings. Well…the experience left me in misery.  Sure the dumplings tasted good, but I felt almost as awful as I would have if I were to have used regular flour.  Why?

Well, the foundation of most gluten-free flour is grounded rice, potato starch, sugar, and even some finely grounded nuts, such as almonds.  Remember my list of foods that my body likes?  Well, there you go.  Of course, having spent close to 4 Euros on this bag of flour, I intend to use it all, but sparingly (it’s good until next year).

  • Nightshade vegetables & fruits As much as I love them.  I have said goodbye to tomatoes, bell peppers, potatoes, eggplant (mostly), peppers, and most berries (cranberry exception).  They cause/increase inflammation and possibly insomnia, so it’s just not on.
  • Citrus Fruits – High sugar content, acidic, and too much vitamin C.  Well, all of these things I can do without. I already take a daily supplement of vitamin C, so I can live without them. Of course, as mentioned above, every now and again, I can eat a grapefruit. 🙂
  • Caffeine-heavy products – So, that basically wipes out tea, coffee, sodas, and even chocolate. 🙂  Of course, anything can be consumed in moderate amounts.  Still, I do not drink coffee, and rarely tea or soda. Of course, I mentioned chocolate before.
  • Meats – Like grains. It’s simply not on.
  • Milk – I always find it strange that I can eat yoghurt, but not drink milk. Well, that’s the reality. I can, however, use heavy cream for cooking.
  • Nuts & dried fruits – Too much sugar, too challenging for the body to process. 
  • Alcohol – I’ve never been partial to drinking alcohol. That being stated, alcohol simply presents a challenge for many with FMS. Want to feel more tired? More nauseous? Less restful sleep? Then, drink alcohol. I’m good without it though.

—-

Other things of consumption to think about?

Well, if you smoke, STOP. Smoking increases pain severity.

Chewing gum? Pause. Check the sugar content. Your sugar intake may be having an adverse impact on your health.

Of course, the research on what foods actually help or hinder us is limited.  Each person is different. So, each of us must take responsibility for what we put into our bodies.  Don’t just read this blog or something else and say “Aha! Now I know what to eat!”

Don’t be lazy!

Instead, take this information and use it for your own research. As I mentioned before, it has taken me 6 years to sort this out for myself AND it is still an ongoing process, especially as my body grows older (as a woman, this presents certain nutritional and hormonal issues).

What I’ve come to understand is that, no matter what, I must love my body.

It’s become a mantra…

I must love my body, even when it isn’t doing what I want it to do, even when it isn’t looking the way I want it to look, even when it feels like a stranger to me.  I must love and care for it the best way that I can.

I must shut out the emotional voice of my body that sometimes longs for foods that are unwise for me to eat, and listen carefully to the wise voice of my body that reveals to me the foods that will help me heal and maintain balance.

Food is fuel for our bodies, not a crutch for our self-esteems.

The Take-Away?  Well, I try to follow two basic rules when shopping, especially when I am thinking to buy something new:

  • If the food can live on a shelf longer than one to two weeks, then I don’t buy it.
  • If the food is in a can, bottle, plastic package, then I hestitate to buy it and refer to the first rule.

 

Well, I’m off to the grocery store! Happy Sunday!

P.S. If weight is an issue for you and you are looking for a place to begin, or you are needing inspiration on your journey, then check out fitness motivation speaker and certified women’s fitness, weightloss, and nutrition trainer Erika Nicole Kendall‘s blog:  A Black Girl’s Guide To Weightloss.  Kendall’s blog covers a variety of topics, including fitness, body image, sex, culture, food recipes, and beauty.

In the beauty of our imperfections…

(Disclaimer:  This posting is written in generalized terms.  It is not to meant to state that all men and all women believe, think or act in the following ways.  Rather I have written in this manner to emphasize the significance of the issue at hand.  Thus, please understand that I am quite aware of the shades of grey in how men and women relate to one another.  Watch the videos, read my words, and contemplate.  Many thanks in advance.)

Think again, if this is all that you believe or understand about women (or yourself)…




or what we (or you) must be or become for you (or others)….


Learn what is real… 

Learn who women really are…


 and what makes us beautiful…


what makes us worthwhile…


and the perfection in the beauty of our imperfections…

A very belated Happy International Women’s Day(8th of March, 2012)… Celebrate a woman today, and if you are a woman, then celebrate yourself!

Until  next time…

Best,

D.

P.S. : Don’t worry, your time is coming… 

And men, while you are busy worrying yourselves about how we, women, ought to look, why not begin to consider your own reality and the mounting body image issues that are to be your lot…  because certainly you realize that the real image of yourselves and the image presented by the fitness and beauty industries certainly do not agree.  The disparity will only increase as time presses on…

The Reality…. 

The Expectation…