Fibromyalgia | 15 Years Later…

Orchid and Droplets

Recently, as in today, I have been listening to the music of Wardruna, a Norwegian band focused on sharing Old Norse traditions, reclaiming it from those who have misappropriated it. Let’s make it quite clear, I am rather ignorant of many aspects of Old Norse traditions.

The closest I came to learning anything about Old Norse tradition was taking a course on Germanic languages (thank you, Professor Robinson) and studying the rune poems to learn about the runic alphabets. That’s it.

Still, I found myself entranced by the voice of Einar Selvik singing the poem “Völuspá,” which tells the Norse creation myth. Certainly, I understood nothing of the words, but the passion of his voice brought tears to my eyes. Such is the power of music.

Völuspá tells not only of the birth of world, but also its death and rebirth.

Fifteen years ago, I realized that something was terribly wrong. I felt tired, sick, and in pain. For two years, I searched for an answer. At various points, I was convinced that I was just psychosomatic, it was all in my head–it didn’t help that my doctor was dismissive of my condition and did little to help. Ultimately, I learned the name of my condition: fibromyalgia.

I wrote quite a bit about my journey with fibromyalgia between 2011 and 2015. For the past six years, I have remained relatively quiet on the topic and this blog for a variety of reasons. However, I would like to share with you a little about my journey.

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If I think back to 2008, when I first received my diagnosis, my mind immediately remembers the laundry list of medications I was asked to take just to function. I spent more time at hospitals and clinics than at any other time in my life. I joined a support group that caused me to realize that there was some other way that I wanted to live…

I wanted to find a path to living a life that held meaning to me and not one defined by my illness. I believe I found it.

I became vegan (now pescatarian), started meditating, doing yoga, and taking walks regularly, and began scaling back on the medications I was being asked to take. Ultimately, I went from taking approximately eleven medications to taking three. And for the past four years, I take only one…and it’s not for fibromyalgia. Instead, I go regularly for acupuncture or massage to help with pain management.

Choosing to Do Things Differently

Living with fibromyalgia means living with uncertainty: uncertainty of what one can do, how one will feel, etc. It is understanding that one’s sense of self-efficacy will be shaken if not shattered. There is nothing quite as humbling as waking up to realize that one can neither move because of pain nor remember a particular word (or two) due to brain fog. One’s body can become an enemy as it seems to work against one’s mind. As a result, one’s self-concept may begin to unravel–it certainly did for me.

I’ve spent the past decade redefining myself, constructing a new self with the fragments of self that survived pre-fibromyalgia, filling in the missing parts with who I have become. Certainly, everyone changes over time. However, developing a chronic illness in adulthood, in particular, means having to accept a change in a well-established sense of self-concept as well as deal with the potential fallout of being ill. A long-term battle between who one is and who one used to be can ensue.

Blossoms…Warmth

So, what can you do?

Choose to experience life differently.

For a long time, I was unhappy with my very nomadic life of living for only few years in any one place. However, now, I believe that my nomadism has been beneficial to my understanding my life with fibromyalgia. With each new place I have lived, I have had a chance to experience the world in a new way. Eventually, I came to the thought: why not remain open to experiencing myself differently, not just the world?

The challenge was no longer to hold on to an old concept of self, an old identity–it was to see and embrace a new aspect of self. Who am I now? How have I changed? What have I learned? Where do I want to go now on my journey?

Choose to ask yourself questions that open yourself to a newer you.

I realized that there was nothing to fear in being different from who I was. In the uncertainty of my condition, I found certainty. Having fibromyalgia has taught me (repeatedly) to be mindful of my physical and mental limits. It has confirmed for me certain goals and allowed me to discard others. I have become a kinder person to myself. Also, I am very curious about how my illness will continue influencing my perception of the world around me.

Remember: be who you are, embrace who you will become. In the interim, work on creating a life full of meaning for you. Let it be a life not defined by, but informed by your challenges.

Look forward to your rebirth.

Until Next Time,

Diedre

Today On My Kindle:

Feeling Good About Yourself Shouldn’t Be A Reward

Ajigaura Beach, Ibaraki, Japan

Rewarding oneself is not particularly uncommon. We reward ourselves for a variety of reasons, usually after accomplishing something considered a goal or an important task. If a quick internet search on the topic of rewarding oneself proves anything, it is that, at its core, people are seeking reasons to feel better about themselves.

How we choose to reward ourselves also varies. However, some examples are going out to eat, shopping, or taking a vacation. Using food, in particular, may tap into childhood experiences, where food may have been used either as a reward or punishment, based upon behavior. Ultimately, how you choose to reward yourself for your achievements is how you choose to reward yourself.

Lately, I have been reading about motivation and engagement, particularly within the workplace. After all, I spend a great deal of my working, and understanding how and why I am working is important to me. Just so you know, I tend to be a more intrinsically motivated person, which has its benefits and drawbacks. Regarding engaging with life, I am finding my flow.

Journeying toward the within is lifelong. When I first started this blog, just over a decade ago, I little knew my direction, only that I was moving towards something or self that was different from what I knew or had come to accept. Ten years later, I have come to realize that…

I have spent a long time thinking that feeling good about myself was a type of reward. It wasn’t something that I was allowed to experience on daily basis. It was a treat, as it were. I could reward myself with feeling good about me and my life after I had accomplished something meaningful, after I became someone useful, etc. Feeling good just because I exist wasn’t a concept I inherently understood.

This, of course, may seem rather strange, considering my background as a therapist. Being a therapist doesn’t mean, however, that you have your own psychology completed sorted. After all, therapists need therapists, too. It may be far easier to see the problems of others and understand how to effect positive change than to see and make changes in one’s own life.

I am certain that I am not alone in this thinking pattern of feeling good as a reward. It is telltale of a life defined by expected perfection and overachievement. It can mean a life of never feeling quite good enough and of rarely, if ever, acknowledging what one has done…because there is always some way that one can improve or that something more that should be done. An accomplishment becomes a brief signal that for a moment you can feel good about your existence.

Such a difficult way to live life…

Kashima Shrine Gate, Japan

Feeling good about yourself can be an everyday experience. It comes with acknowledging your existence as being meaningful–that as you are, you are worthy. Worthy of what? Worthy of self-love, self-care, self-regard, self-trust, etc. The life you have built up until now is yours to do with as you will. It isn’t a race that you either win or lose. It is simply a life, one that can be lived positively (if not always happily).

So, where do we go from here? Well, I have a couple of recommendations:

  1. Start simple – Think/write about how you have been viewing you and your life up until now.
  2. Inform yourself – Learn about ways you can improve enjoying who you are in your everyday life.
  3. Step back – Take time to yourself, just for yourself, to do something/experience good.

I enjoy reading. Here are some books that I have been using to help my journey:

Feeling good about yourself, if it is unfamiliar to you, may be likened to forming a new habit. Let’s be real, it will take time, consistency, and a patience. There are various theories and approaches to how one can form a habit. My recommendation is to keep it simple and focus on the moment you are in and how you are feeling.

You may not always feel great about your thoughts and your actions. However, you can always feel good about who you are and your existence.

Check out this interesting article on rewards by Gretchin Rubin (PsychologyToday.com): “Why We Shouldn’t Reward Ourselves for Good A Habits…With One Exception.”

Until Next Time,

Diedre

This morning I woke up

This morning I woke up. The sounds of the day seeped through my rain-streaked windows. My body, chilled by perimenopausal night sweats, ached. I am used to discomfort.

This morning I woke up. And a thought came while I was busying myself, making my bed, shelving books and listening to the ding of my phone:

what if this is it?

If we make it through arduous task of materializing our existence and passing through the narrow canal of our mothers, we say to this world,

“I am here.”

For some who come to meet us, our arrival is enough. That we are here. That we made the journey safely is enough.

“You are here.”

I woke up this morning, you see. I glanced at social media, which tries to inform me that my life should be valued by percentages of views.

Your views are up 5% from yesterday. Your views are down -17% from last week.

I wonder when it begins, this messaging that what you do and…

You are not enough.

Is it the silent thought burning in hearts and minds of some of those who come to greet us on our first day in this world?

Is it in comparisons heard at home and school as we move through childhood?

Is it now at work?

It’s still morning. And, as I wrote, I woke up, perhaps again. I wondered, what if this life that I have lived and am living were my entirety.

Is it enough?

It is. And it isn’t.

There is much that I would still like to do while I am here. Still, I am done with having to prove my value. I have arrived at this point, without uncertainty:

I am here. I am enough.

Self-Care| Letting Go of Promises & Finding Peace of Mind

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Untitled. D. Blake, 2017

It’s a grey day, I’m at Starbucks, eating a strawberry cheesecake scone and drinking iced tea, and I feel a little tired. I started my morning by taking a long walk, looking at flowers, and listening to The Tao of Fully Feeling by Pete Walker. Yesterday, I finished Walker’s Complex PTSD: From Surviving to Thriving. On a daily basis, I consume books, articles and videos on childhood and adult trauma, self-care, fibromyalgia, personality disorders, and how to keep it together when you’re broken and involved. It’s a healthy diet of I’m ready to change.

This year marks a decade since I received my diagnosis of fibromyalgia. However, it’s been a life marked by a host of diagnoses: depression, SAD, OCD, PCOS, IBS, Raynaud’s syndrome, overweight, underweight, high blood pressure, etc.; and I was a walking pharmacy–there always seemed to be some new and improved medication to fix whatever was broken inside me.

All the while, I was doing the arduous work of unpacking my childhood, being therapized and therapizing myself, while codependently trying to fix everyone else’s problems, whether they wanted me to or not. I was without clear boundaries in my personal life, struggling with a compulsion to solve sadness, my own and others.

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Places to go. D. Blake, 2017.

Letting Go of Promises

You see, I made two promises a long time ago–not to myself, but to my family. I can’t recall my exact age, but I remember the moment with clarity. An incredible argument took place between one of my older siblings and my parents. Without going into the details, that moment represented the totality of my family’s dynamics: unbounded dysfunction.

Nothing was ever a discussion, always a war zone…and the children were used as  landmines against each other and seen as acceptable collateral damage. I made a promise aloud to my mother on that day. I told her that I would 1) become a therapist and 2) fix my family.

I had forgotten about those promises for two decades. Unearthing them again in a therapy session, back in December 2014, shook my world. I had to face the fact that I had been unconsciously living a life based on these promises…

In 2006, I became an art therapist and mental health counselor. I spent years, prior to and thereafter, confronting my parents on their unacceptable behaviors towards my siblings and me. I tried to create dialogue. I tried to be a bridge. I tried…until I realized, in 2016, that I couldn’t do that anymore.

I can’t keep these promises that my younger self made. I can’t undo what was done to my siblings and me. I can’t fix my parents, nor do I wish to anymore.

Still, I was raised to cater to others. I was raised to take the blame for others. I was raised to disregard myself and defer to others. It’s no simple task living within and for myself.

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Self-portrait, D. Blake, 2017

Peace of Mind

So, I’ve been reading, watching, confronting and comforting myself. I take daily walks, I remind myself that change is a moment by moment act of meeting yourself wherever you are. I can’t walk back my childhood nor the harrowing moments of my adulthood. However, I can walk toward the type of future I would like to have and the future self I would like to be.

In the past, fixating on the emotions of others and even myself, and trying to control the outcome of everything was what brought me a sense of fragile peace–as long as I knew what someone was going to do or what was going to happen next, then everything was okay.

Now, it’s the simple things that give me peace of mind: flowers, stones, water, changes in the weather, the sound of laughter, singing, and dancing–flowing with what is rather than what I would like to be.

Change seems to happen with the smallest and simplest of actions…at least, this is what trying to live within myself has been showing me lately.  If you’re on a similar journey, then I hope it’s the same for you.

Until Next Time,
D

Free Write| Owning myself.

free-speech-346x336She’s looking at me again. I don’t know what she’s thinking, nor do I want to know. It’s too early in morning, and I’ve already got a laundry list of stuff I need to take care of–she’s not on that list.

I never look at her long enough to feel her fatigue, just enough to know that she’s not going to break…yet. She doesn’t deserve my empathy or compassion–at least, not now.

I know she won’t say anything. That’s the way she is. She just stares. Maybe later, if I bother to ask, she might say that she “feels tired,” and “wishes that this could all stop.” She complains a lot. That’s why I never ask.

I meet my partner, and we talk about how difficult things are between us. They always are. We complain that we’re tired and that we wish that this could all stop between us. We complain a lot. That’s why I decided to ask her.

I get home. I look at her. She’s still staring at me. I can tell she’s breaking now. She’s been broken so many times–I’m not sure how I’ll fix her this time. I’m starting to think that it’s too late now. That’s why I decided to ask her about her thoughts, her feelings, her needs, and her wants. She says…

“There’s nothing to fix. Just recognize me. Be with me. Own me. I am you. You are me. How long will you deny your fragility?”

Indeed.

Until Next Time, 

D.

 

Reflection | From up high…

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View from Keisoku Mountain, Japan, March 2018

Many things seem so small, especially problems.

Every couple of months, I find myself standing on top of a mountain somewhere in Japan. Each step upwards feels like torture…and an accomplishment.  I look toward my fellow climbers in awe, at their speed and the seeming ease with which they climb. Of course, I don’t know what their experiences are–they could be suffering as much as I am. The climbing could be a testimony for each one of us that we are alive and still trying.

Recently, I’ve been reflecting on the past decade of my life. At this moment in 2008, I was planning a wedding and preparing for a future that certainly isn’t the one I’m living now. By this time in 2009, I was dreaming of living in the house that I would eventually call home before the year’s end. In 2010, I had lost 80 pounds, was trying to save my dying marriage, and by Thanksgiving, was mourning the death of my beloved pet.

The end of March 2011 found me preparing for my third visit to Rome, trying to figure out how to live life as a single and mostly jobless person. I was still dreaming–this time, of living in Rome. By 2012, I was a full-time undergraduate, living, studying and working in Rome. The following 4 years were marked by a series of avoidable and unavoidable events, all of which left me pretty broken but with a good deal of insight.

By the end of March 2016, I had been living in the U.S. full-time for 6 months. I had gained back half the weight that I’d lost, was in the throes of a serious depression, and living in a highly psychologically toxic environment. Something had to give–I had fallen to my lowest point.

When you’re at the bottom, seeing or even imagining the top can be difficult.

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Keisoku Mountain, Japan, March 2018

 

 

I couldn’t see up or even imagine what life could be like beyond what I was experiencing at that time. However, I knew that there had to be some other kind of life for me.

Where I was, how I was, who I was, and what I was doing…was not my final destination.

I didn’t know if I could ever be happy. I didn’t know where I could go or even what I would be capable of doing. I just knew that I no longer wanted to be a participant in prolonging my circumstances.

I had to take a step forward and upward, even the smallest one. And so I did.

On Friday, March 17, 2017, I began a new journey. I boarded a flight to Japan, a country I’d never been to before. I didn’t speak the language and knew very little about the culture. Still, I knew that I had to take the chance, to give myself the opportunity to change, to begin climbing out of the deepest hole that I’d ever stumbled into.

When you’re climbing a mountain, you have to use both your hands and feet. 

Now, it’s Friday, March 30, 2018, and I’m sitting in a Starbucks somewhere north of Tokyo. My partner is working on her laptop, and I’m listening to The War on Drug’s “Pain.”  I haven’t reached the top of my mountain. Still, I am no longer at the very bottom. It’s a start, and that’s always the hardest part when you’re climbing–at least, for me. There are times when it feels like I can’t catch my breath, like my feet won’t take another step, like my hands won’t support me as I reach upwards. Still, I try.

That’s what I’ve learned over the past decade. All you can do is try and never give up. Every problem is a mountain. Tackling each one means getting to the top. Getting there, however, means looking ahead, taking each step carefully, being prepared to use whatever means necessary to secure yourself…and definitely having those who care about you by your side.

Until Next Time,

D.

 

On silence, healing fibromyalgia, dealing with narcissism, and learning a whole heck of a lot about myself

First, thank you to my followers, both new and old, for continuing to bless me with your support.  I have not been around much, nor have I posted much of anything personal. Still, you continue to stick with me. Thank you!

 

“If you have nothing [nice] to say…”

Over the past year and a half, my life has changed dramatically. Some of those changes were good, others were not so good. Still, I try my best to take changes as they come, learn from them what I can and keep taking steps towards achieving my goals. In my opinion, that’s the most effective approach to living my life.

Part of the process of accepting change is observing change. And I truly believe that observation is a silent process. It’s hard to observe and act at the same time–at least it is to me.

So, I’ve been in observation mode, mostly observing myself and my reactions and actions in dealing with myself in my environment, as well as just the environment itself. I’ve spent a lot of time in my head and subsequently in my body, i.e. I’ve been sorting through my mental blocks (negative self-talk/thinking) and how they impact my health and prevent me from quickly reaching my most important goals.

On the subject of health: I’m glad to state that my health has been truly awesome, and that my fibromyalgia symptoms have diminished significantly. I’ve had fewer flares, fibrofog moments and have been getting enough normal/restful sleep (between 7-9 hours). Also, I’ve been walking for about 1 hour almost daily and have recently started the BeachBody On-Demand 30-Day Free Trial that has a great deal of exercise programs for people of all levels.  If you have fibromyalgia and are interested in starting or improving an exercise program, I would say check it out because it allows for you to select programs by type: cardio, muscle building, less than 30 minutes, slim and tone, dance, low impact, and yoga. Personally, I am sticking with less than 30 minutes, low impact, dance and yoga.

I think my greatest challenge is that I consume news and, as a person of colour, it stresses me out…then again, who isn’t stressed when watching the news. Still, it’s important to stay informed, and I try to do so without being inundated.

So, what have I learned during my silence? A whole heck of a lot. Here is a list:

So, that’s it. It’s good to be writing again.

Until Next Time,

D.

 

 

 

 

 

 

 

 

FIBROMYALGIA & BEING A SOCIAL PARIAH: REINVENTING YOURSELF AFTER LOSING EVERYTHING (PART 2)

typing on the computerWhat if you never had fibromyalgia? How would you have lived your life up until this moment? What dreams would you have already fulfilled? Better still, who would you have created yourself to be?

Here’s the deal, regardless of whatever your chronic illness is, there are likely many questions like the ones above that you have asked or are actively asking yourself right this very minute.  It’s human nature to wonder about the possibilities, especially when it comes to your own life (and if you aren’t wondering, please, ask yourself why).  Maintaining our curiosity, that element of wonder, about ourselves and our the world around is key to making any significant change in the way we live.  When we shut ourselves down and shut out the world, we are essentially denying ourselves access to the power that subjective and objective knowledge can bring to furthering our self-understanding.  And increasing self-understanding means increasing our ability to achieve self-mastery.

When we think of self-mastery, we may think of complete control of the self, i.e. control of thought which leads to control of actions, which means better ability to respond (not react) effectively to the world around us.  Simply put, self-mastery, self-understanding, and self-awareness go hand in hand, best summarized by this quote:

Watch your thoughts, they become words;
watch your words, they become actions;
watch your actions, they become habits;
watch your habits, they become character;
watch your character, for it becomes your destiny.

14533091400317-e1453308786450If you have fibromyalgia, then you know that one of the first thing you lose is control.  You lose control over your body and your mind.

The physical activities that you used to do with ease now prove difficult. The memory that you once prided yourself on now has sticky notes all over it marked fibro fog.  That’s just the way it is. There’s no shame in it. Having fibromyalgia means 1) losing control over the physical vehicle that transports who you are (body), and 2) losing control over the mental vehicle that relays your who you are to the world around you and to yourself (mind).  Of course, the severity of the loss depends of the severity of your fibromyalgia…and your engagement in self-care.

You’re Not Broken, Just Different

Anyone who knows me well knows that I do not believe in regret. Truly, I don’t. I believe in lessons learned.  I think regretting your life, in any shape or form, does not help you to move forward from wherever you are, especially when you have a chronic illness. The fact is the past is in the past. Yesterday is already the past. And today will be the past quite soon. So, here are the only questions that you need to ask yourself today:

What step(s) will I take to move my life forward today?

What step(s) have I taken to move my life forward today?

They are really simple questions with big implications. They imply choice.

You did not have a choice in having fibromyalgia. You do have a choice in whether or not you will allow it to control your life. Although you may feel broken, unwanted, used up, without purpose, or simply helpless, you are not.

You are not broken. You are different. 

The person you knew yourself to be is in the past, along with yesterday and all the days before that.  The high points and the low points of that person is gone. Keep her or him in your memory with fondness, but do not dwell.  Like how you may think fondly upon your teenage self or child self, think so upon who you were. But get excited about who you are and who you are crafting yourself to be.

Remember how when you were a teenager or a child, you couldn’t wait to see what type of adult you would be? Perhaps you became that adult, perhaps not. Either way, it’s time now to tap into the curiosity, to apply today that wonder that you had about the unknown you. It’s time to tell yourself that there is nothing to fear in being someone you don’t know or cannot yet imagine.

This is the first step in reinventing yourself: getting to know the new you. 

How do you do this? Ask yourself the first question I proposed above (What step(s) will I take to move my life forward today?), then take the quote above as inspiration: watch your thoughts. Listen for an answer. What does your new self want to do? Be curious about that self. Work to understand that self.  Be kind to that self.

Look out for Part 3: The Naysayers & Other Emotional Vampires

Read Part 1:  Reinventing Yourself After Losing Everything

Fibromyalgia & Being a Social Pariah: Reinventing Yourself After Losing Everything (Part 1)

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Image linked from WordPress.com gallery.

There is nothing more sobering than experiencing significant loss, especially when that loss hits very close to home.  At those times, knowing what to do can be challenging, and finding support may prove difficult.  These are the moments that can have the greatest impact on how you define yourself and your relationships with those around you and the world as a whole.  More importantly, significant loss forces you to realize that you may be, after all, alone in this world.

There are some who will disagree with the following statement: when you experience significant loss, the likelihood of becoming a social pariah increases dramatically.  You don’t have to look very far to see the truth of it. Just look at the rise and fall of celebrities.

The fact is that when you have everything or are seemingly rising to the top of the social strata, you will find yourself surrounded by more people, for good or ill. Conversely, when you lose everything or are seemingly hitting rock bottom, there will be fewer people remaining by your side. It’s a harsh reality, but a truth that each person going through or who has been through significant loss has to face: you might just be very much on your own.

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I decided to write about this because of my observations and personal experiences since becoming ill with fibromyalgia.  As I have written many times, having fibromyalgia means experiencing significant loss, especially of self. However, you gain a great deal alongside that loss. You find out, for example, who your true supports are and what really matters to you in life.

Fibromyalgia forces a mental housecleaning (if you allow it) and life cleaning. It forces you to question the reality that you have chosen to live and then asks you to prove the worth of that reality, i.e. is your reality one that is worth enough for you to fight for it?

While you attempt to answer that question, those around you will have to answer this one: is this person worthwhile to keep in my life? Of course, the question may not be so direct in nature, but that is what it comes down to: your worth = potential benefit in their lives. If you worth is diminished, so is the benefit that they experience.

Whether or not anyone wants to agree, the fact is that, for some people, relationships are based on benefits. There are relatively few relationships that I have observed that function solely on selflessness.  Some people care as long as there is something to benefit from giving that care.  However they define benefit doesn’t matter.  The key thing is whether or not they are still capable of receiving that benefit if they maintain a relationship with you.

I have found that having fibromyalgia or any chronic illness can make you become completely self-focused because you are having to, maybe for the first time, expend a lot of mental energy on understanding how to improve your health and how to survive on a daily basis. During that period, your ability to care for your relationships, work, and other commitments declines.  However long you spend during that period of uncertainty has a direct impact on your relationships, work and other commitments.  Given the recurrent and potentially severe nature of fibromyalgia symptoms, you may will find yourself repeatedly going through this experience.

After some time, you may find yourself friendless, jobless and uncertain of what to do next. Perhaps you are already at that point.

Keep faith and do not despair.

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There is a flip side to losing everything, to hitting rock bottom, and to being utterly uncertain. Beyond choosing to remain where you are, there is the other option: gaining everything, reaching for the sky, and becoming driven. 

All it takes is deciding to see yourself in a new person.

Too often we get bogged down in the identity that we have created or accepted for ourselves.  To truly move forward after losing everything means accepting that you are no longer who you used to be.  It means shedding your old identity.

It doesn’t matter what age you are when fibromyalgia entered your life, you can still reinvent yourself. In fact, I think the older you are, the more important it is to choose to reinvent yourself. No matter how difficult it may seem.

Reinventing yourself is what I call a process-decision. It’s an ongoing experience of deciding and allowing for various internal and external processes to occur to manifest change.  It begins with simply stating to yourself that you are have already changed and are constantly changing.

Of course, there are many practical steps that you can take to begin that process now.

Look out for Part 2

Until then,

D.

Check out my latest Vlog post on dealing with depression and anxiety. 

 

 

 

May 12 is Fibromyalgia Awareness Day, But I’m 10 Years In.

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This Thursday, May 12th, will be a quiet day for me. It’s Fibromyalgia Awareness Day.  I’ll do what I usually do: strive to thrive, make it through another day, try to find ways to make a living, find balance, take better care of myself, wonder what the rest of the world is doing beyond my computer screen, etc.  Still, this year’s theme is “Your Voice Matters”, so I am writing today because I will likely not remember to do so on Thursday, whether by natural absent-mindedness or fibrofog.

However, there isn’t really much that I have to write about fibromyalgia today beyond the fact that it annoys me that WordPress’ word processor does not recognize the words fibromyalgia and fibrofog. Then again, it doesn’t even recognize the name WordPress, so perhaps I ought not to complain.

Well, I am ten years (by my symptoms) or eight years (by diagnosis) into this illness. Because of fibromyalgia, each day presents unique opportunities for me to learn more about myself, particularly my level of tolerance for the world around me and my position in it.  Even though I have had to make unexpected changes in my life and goals for my life, I am a far better human being because of it.

I cannot stress it enough: my illness has made me more human.

When you are usually on top, it is easy to spend your time looking down on others without ever realizing that you are doing it.  When you always have, you don’t understand the perspectives of those who do not.  When you only know yourself as competent, you cannot fathom the handicaps of others. When overachieving is all you ever do, you can never understand the satisfaction of mediocrity.

Fibromyalgia has taught me about my blind arrogance. It has shoved me off a very high platform and asked me to find my way back up.

I have accepted that challenge.

The challenge is neither to become blind once more nor to fight against fibromyalgia.  The challenge is to love, learn and live, embracing who you are, who others are, and especially who you decide to be.

On may 12th, if you have fibromyalgia or know someone who does, take a moment in your day to pause and appreciate what you have, who you are, and what you can do to make a difference in the lives around you.

Until Next Time,

D.