FIBROMYALGIA & BEING A SOCIAL PARIAH: REINVENTING YOURSELF AFTER LOSING EVERYTHING (PART 2)

typing on the computerWhat if you never had fibromyalgia? How would you have lived your life up until this moment? What dreams would you have already fulfilled? Better still, who would you have created yourself to be?

Here’s the deal, regardless of whatever your chronic illness is, there are likely many questions like the ones above that you have asked or are actively asking yourself right this very minute.  It’s human nature to wonder about the possibilities, especially when it comes to your own life (and if you aren’t wondering, please, ask yourself why).  Maintaining our curiosity, that element of wonder, about ourselves and our the world around is key to making any significant change in the way we live.  When we shut ourselves down and shut out the world, we are essentially denying ourselves access to the power that subjective and objective knowledge can bring to furthering our self-understanding.  And increasing self-understanding means increasing our ability to achieve self-mastery.

When we think of self-mastery, we may think of complete control of the self, i.e. control of thought which leads to control of actions, which means better ability to respond (not react) effectively to the world around us.  Simply put, self-mastery, self-understanding, and self-awareness go hand in hand, best summarized by this quote:

Watch your thoughts, they become words;
watch your words, they become actions;
watch your actions, they become habits;
watch your habits, they become character;
watch your character, for it becomes your destiny.

14533091400317-e1453308786450If you have fibromyalgia, then you know that one of the first thing you lose is control.  You lose control over your body and your mind.

The physical activities that you used to do with ease now prove difficult. The memory that you once prided yourself on now has sticky notes all over it marked fibro fog.  That’s just the way it is. There’s no shame in it. Having fibromyalgia means 1) losing control over the physical vehicle that transports who you are (body), and 2) losing control over the mental vehicle that relays your who you are to the world around you and to yourself (mind).  Of course, the severity of the loss depends of the severity of your fibromyalgia…and your engagement in self-care.

You’re Not Broken, Just Different

Anyone who knows me well knows that I do not believe in regret. Truly, I don’t. I believe in lessons learned.  I think regretting your life, in any shape or form, does not help you to move forward from wherever you are, especially when you have a chronic illness. The fact is the past is in the past. Yesterday is already the past. And today will be the past quite soon. So, here are the only questions that you need to ask yourself today:

What step(s) will I take to move my life forward today?

What step(s) have I taken to move my life forward today?

They are really simple questions with big implications. They imply choice.

You did not have a choice in having fibromyalgia. You do have a choice in whether or not you will allow it to control your life. Although you may feel broken, unwanted, used up, without purpose, or simply helpless, you are not.

You are not broken. You are different. 

The person you knew yourself to be is in the past, along with yesterday and all the days before that.  The high points and the low points of that person is gone. Keep her or him in your memory with fondness, but do not dwell.  Like how you may think fondly upon your teenage self or child self, think so upon who you were. But get excited about who you are and who you are crafting yourself to be.

Remember how when you were a teenager or a child, you couldn’t wait to see what type of adult you would be? Perhaps you became that adult, perhaps not. Either way, it’s time now to tap into the curiosity, to apply today that wonder that you had about the unknown you. It’s time to tell yourself that there is nothing to fear in being someone you don’t know or cannot yet imagine.

This is the first step in reinventing yourself: getting to know the new you. 

How do you do this? Ask yourself the first question I proposed above (What step(s) will I take to move my life forward today?), then take the quote above as inspiration: watch your thoughts. Listen for an answer. What does your new self want to do? Be curious about that self. Work to understand that self.  Be kind to that self.

Look out for Part 3: The Naysayers & Other Emotional Vampires

Read Part 1:  Reinventing Yourself After Losing Everything

Motivation…Oh, Where Did It Go?

Image found on GIS

Image found on GIS

I’m stuck…sort of. It’s the end of August in Rome and I’ve been living through Attack of the Mosquitoes and Sweat World.  The fan I had for two days died. It’s not its fault. It was pretty old.  Still, I need a new one.

My manuscript remains unfinished and I toy with a few stories in my mind. At the same time, I think about getting older and failing to meet external expectations.  I wonder about my internal expectations.  What do I expect of myself?  How do I define that?

It’s hard remaining in that in-between state, that cocoon, like waiting to be born again, except it has nothing to do with Jesus. I’m there, I’ve been there for some time now, and I know I’m getting close to the end of that stage…but it’s terrifying.  It’s terrifying knowing that it’s impossible to go back, or stay where you are, or do anything else other than move forward.

Still, terror can maintain stasis, paralyzing the motivation to either fail or succeed–yes, you can be motivated to fail.  The more we try to push terror away, the more intense it seems to become.

So, I’ve decided to embrace my terror. All aspects of it. The terror of success and of failure that is embodied within.

I’ll have a talk with the twin parts of myself: talent and self-sabotage. I’ll let them know that it’s okay to be terrified.

I’ll let them know…

It’s okay to fail as long as I (we) continue aiming to succeed. 

Until Wednesday,

D.

 

Fibromyalgia: Let’s Not Beat Ourselves Up!

DUI of negative thoughts

I woke this morning tired.  Mind you, I had only fallen asleep four hours before.  It’s a hazy morning, humid but tolerable with an intermittent breeze. I’m annoyed. Why? Because I’m tired, because it’s humid, because my mood took a slight dip while I wasn’t paying attention.  My first thought: I suck.

It’s not an uncommon thought for many, even if worded differently.  It’s the thought that rises when you believe that there is something you could do but haven’t, or that you have done but shouldn’t, etc.  In this moment, I suck because I’m tired and feeling lazy due to the humidity.   I suck  because my joints and muscles ache and I would prefer not to move.

Of course, the reality is that I do not suck.  Actually, I’m quite a lovely person, who tries her best at all times.  I just happen to have this type of response every now and again when it comes to dealing with my fibromyalgia.  It’s also a consequence of being perfectionistic.

So, how will I get myself out of this funk?  And how can you?  Well, I’m giving myself the proverbial reality check.  There are somethings that are within my control and beyond my control, including my body, my environment and the weather. What’s the point of beating myself up? There is none.

Putting myself down is a slippery slope that leads only to lowered self-esteem—and I’m not about that life.  The life that I’m about is one that lifts and heals the spirit, the body, and the mind.  I’m working on transforming that I suck statement into something more self-empowering, but first I have to confront with what’s really going on, take stock of my reality, and take action to improve my day.  I hope you will too! 🙂

In the meanwhile, check out this great personal article by analyst and professor Jane Boylton, Psy.D., M.F.T., “How Reality Checking Can Save Your Life & Your Dreams: You Can Easily Avoid One Sure Way to Suffer”  (PsychologyToday)

 

Until Tomorrow,

D.

30 Day Challenge: Acknowledge the Right of Your Life

"Black Health Is..." Found: http://cdn.madamenoire.com

“Black Health Is…” Found: http://cdn.madamenoire.com

To My New Followers: Welcome to my blog! I am very happy and grateful that you decided to follow me on my journey and hope you will share yours with me as well. 🙂

This is just a brief post about a challenge that I have decided to begin tomorrow. First, however, I just wanted to note that I am one week away from completing my 30 Day Prayer/Meditation Challenge–I really struggle with sticktoitiveness and so I am really proud of myself for coming this far and also for my recent decision to continue the Challenge indefinitely.

I think sometimes we just come across something that works with who we are and are necessary for where we are on our path.  I am glad that the daily practice of prayer/meditation has been helpful for me in clearing my psychological, spiritual and physical space and in paving the way for the new challenge I’ve decided to do.

So, what’s this new challenge?

It’s a challenge that I’m calling: Acknowledge the Right Of Your Life Challenge. Perhaps I should make a hashtag out of it for Twitter and spark others to share in the Challenge.

So, what’s the goal of this challenge?

Simple.  Every day, for the next 30 days, I will write, at least, one thing that is right (positive/awesome/good) in my life.

Why do you want to do this challenge?

Because, from what I understand of myself and looking at the world around me, it is an easy thing to get caught up in what is wrong (negative/awful/bad) with our lives.  

So, I’ve decided to challenge myself for the next 30 days to identify what is working in my life.  It’s simply another step on my path toward self-acceptance and self-actualization.  I hope you will join me. 🙂

 

If you do decide to join me on this challenge, send me a message or comment here and let me know!

And remember, there is always a path to be found…

Until Next Time, 

D.