[Reblog] Fibromyalgia Part 1: the final frontier

[Reblog] Fibromyalgia Part 1: the final frontier

Article by Paul Mountjoy

VIRGINIA, March 15, 2014 — There seems to be a great deal of “fibro-speak” on the internet, resulting from a proliferation of studies and research, as well as a great deal of opinion. Most of the accurate information deals with how to treat the symptoms of fibromyalgia syndrome (FMS).

Studies and research findings of possible causes tend to contradict each other. What one study claims is a cause of FMS, another implies is not. These wide variations in information create a world of confusion for victims of this horrific disorder.”

Raise Your Head…Face Your Day

Work-in-progress, started November 3,2011, acrylic

Work-in-progress, started November 3,2011, acrylic

These words by Nina Ellis-Hervey were important for me to hear today, especially as I have been dealing with managing my body and my illness.   Sometimes I do feel like giving up and feel like I am alone in my struggle to reclaim my life from the grips of my illness.

Although Nina’s words are geared towards those struggling with weight issues, I believe that they are powerful word useful for all people who may be struggling with any illness, physically or mentally, that may cause daily struggle with your body.

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“…I am living life day by day and trying to do everything that way…I am trying to keep in touch with family, with my friends… I have a million and one stressors in my life. And in the past, those stressors made me eat, made me gain weight.

And so now you can see how all that stress could cause me want to want to relapse, to go back to not working out, to go back to not taking care of myself. But that’s not an option. It’s not an option anymore…

It doesn’t matter what excuse you have. You only have one life. You only have one body. And nobody can take care of it, but you. Nobody is going to be responsible for it, but you. And so for me, everyday is a struggle… The battle never ends. This is for the rest of my life.

For the rest of my life, I am going to have to think about where I came from and where I don’t want to go back to. For the rest of my life, I am going to have to think about the foods I put in my body…

I have to always think ahead…I have always prepare myself…and unfortunately, it is a repercussion of my past…and not wanting to go back there…not wanting to even ever let myself go like in the past. I will never do that again.

I owe this to me…You owe it to yourself… It gets to a point that you cannot even listen to outside people. What they have to say is irrelevant…

Your journey is your own…It is not just happy-go-lucky every day for me. I am not just kicking the breeze and skipping through the flowers and the grass.

Some days are hard for me. But when I get back in it, I remember what I am in it for. Adjusting to the new you, it is rough. Everybody is going to grieve the old you…

Anything you do carries. It carries some kind of baggage behind it. I can choose to look as my baggage as negative, or I can choose to let it motivate me to try and to at least do my best…”

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Below is the video of Nina.  Again, it is dealing with her own struggles regarding weight.  So, watch it if you feel it is relevant to you.  In any case, the over all message is a possitive one.


Until Next Time,

D.

What is left…

Fibromyalgia Awareness

Fibromyalgia Awareness (Photo credit: Kindreds Page)

…after all has been stripped away?

More than two years ago, I began this blog at the urging of friends and former clients.  It has been a forum in which I have been able to explore both my personal and professional views on self-development.  More importantly, it has been a self-therapeutic process of addressing the significance of what it means to live with a chronic illness, especially as a counselor.

As indicated in my last posting, I have been dealing with an increase in my FMS symptoms, which has made my life more challenging than it has ever been.  Challenges, however, offer opportunities for self-growth, right?  Right.

If I were asked to write a list of all the “things” that fibromyalgia has taken away from me, it would be quite a long list. 😉  Having an “invisible” chronic illness, such as fibromyalgia or chronic fatigue, can mean the loss of sustainable livelihood, friendships, self-esteem, etc.  That is, it can mean the devastation of how one perceives of one’s self, i.e. self-concept.

English: Common signs and symptoms of fibromya...

English: Common signs and symptoms of fibromyalgia. (See Wikipedia:Fibromyalgia#Signs and symptoms). To discuss image, please see Template talk:Adult female diagrams References fibromyalgia-symptoms.org Retrieved on April 19, 2009 (Photo credit: Wikipedia)

Writing such a list, however, provides little benefit in learning how to take steps forward in the new life  that must be created as well as embraced.

Rather I would choose, and have chosen, to write a list of all the things that fibromyalgia has given to me, such as becoming more empathetic, more patient, more self-caring, more creative, more easy-going, simpler.

And ultimately, fibromyalgia has taught me how to ask for and receive help from others. 

The question that begins this posting is one that I have had to ask myself over the last seven years, and especially in the last several months. The answer that I can now give to myself is

Hope.”

May is Fibromyalgia Awareness Month.  More specifically, May 12th is Fibromyalgia Awareness Day.  Personally, I am ecstatic that awareness of this illness is being spread, especially globally.  With this developing awareness comes a better sensitivity to the plight of those who are dealing with this chronic illness.  After all, there is a reason  fibromyalgia is known as the “invisible illness.”

Thank you again to those of you who continued to visit my blog even though I have not posted in some time.

Until Next Time!

D.