October Was “Talk About Your Medicines” Month! It’s The Final Day, So I’m Talking

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About a week ago, I was contacted by the Community Awareness Coordinator of The American Recall Center. From this contact, I learned something about the month of October that I had I never imagined existed: Talk About Your Medicines Month.

Medication Awareness Spolight: Xarelto (Click to Learn More)

Image Found: Black Press USA, http://www.blackpressusa.com. Click for article on migraine.

Discussing medications is one of those topics that, unfortunately, may be deemed taboo.  Although a whopping 70% of Americans take prescribed medications, making this fact known may leave one feeling stigmatized and may even repercussions, particularly there is a bias for those who take medication due to mental health issues.  A recent study in the UK “revealed that 94 per cent of UK leaders admit prejudice against sufferers remains an issue in their organization.”  The research also indicated that “a third of business leaders think that employees with mental health illness will fail to return to full productivity…they labeled these staff members as unpredictable, weak and erratic.”

From my own limited observations, I have seen people engage in a dichotomous categorization of illness:  “good illnesses” (e.g. cancer) that are worthy of sympathy, and “bad illnesses” (e.g. bipolar disorder) that are unworthy of sympathy.  Anyway, I could go on about this forever.

The point of this piece is for me to talk about my medications.

Image From NJ Family: Article “Help the Medicine Go Down.” Click to read.

 

To the tell truth, I have hated taking any form of medication since childhood.  I hate it now.  Still, I have to do it, i.e., if I want to live my life more fully. That’s the simple fact.  The medications I take are two: bupoprion and aldactone.  The buproprion is for symptoms related to my fibromyalgia, while the aldactone is for high blood pressure.  Other than that I take a multivitamin and call it a day.  In the interest of length, I discuss only buproprion, especially as it is more relevant to the main theme of my blog, i.e. fibromyalgia care.

 

Buproprion

Just so we are clear, buproprion is the generic name for the well-known medication Wellbutrin; and it is a commonly prescribed medication in the treatment of fibromyalgia–perhaps not as common as Cymbalta (duloxetine hydrochloride).

Buproprion, an atypical antidepressant, was prescribed for me because I am sensitive to more typical antidepressant medications like Cymbalta. Buproprion works to alleviate issues with fibro-fog and fatigue, also it helps me with seasonal affective disorder (S.A.D.).

Although taking buproprion has been an overall positive experience, it is important to consider the side effects that a medication can have.  In the case of buproprion, it can cause “agitation, dry mouth, insomnia, headache, nausea, constipation, and tremor…Seizures also occur, especially at higher doses.”

Do experience some or all or none of the side effects?  Well, I would say that I experience some, in particular dry mouth and insomnia.  The insomnia can be highly problematic, and it is still something I am working to fully resolve.  The dry mouth is less problematic, so that I am okay with letting it be.

In essence, for me, the benefits associated with taking buproprion far outweigh the drawbacks experienced as side effects.

Image From Essence Magazine: Article “Why Talking to Your Doctor is the Best Medicine.” Click to read.

What You May Need to Consider:

With any medication, its interaction with your body is unique.  Thus, what I have stated in this post is particular to me, and may not be right for you.

It is important to create an ongoing dialogue with your healthcare provider.  While living in Italy, I have been fortunate to have access to medical support and have a weekly check-in that helps me to keep on track.

For the most part, I see my illness as stable and with a somewhat recognizable pattern.  Still, I make certain that I keep track of how both my body and mind are functioning.   

It is important to remember to take your medication.  I take all my medications at the same time.  That was something I considered and always consider when agreeing to take a medication–taking all of my medications at the same time allows me to create an easy and maintainable pattern. Do whatever you know has helped you in the past to create a routine.

 

Most importantly, remember that you are in charge of your body–no one else.  How your body is cared for is in your hands, and so you must take all precautions necessary to ensure that whatever you do to it is in its best interest.  Don’t leave the decisions solely up to your doctors.  Research the recommended medications, consider your lifestyle, and outline a health goal that indicates how the recommended medications will enable you to achieve it.

The path to health is not always linear.  With enough planning, however, the journey can be a smooth one.

Happy Halloween!  Until Next Time,

D. 

FMS | PainMaps.com: A New Nerve Pain Resource Site

Image from PainMaps: http://www.painmaps.com/

If you are like me, then living in a world of pain is just part of the package of your existence.  Pain is pain, no matter how it manifests or what it is labeled: Fibromyalgia (FMS), Chronic Fatigue Syndrome (CFIDS), Multiple Sclerosis (MS), Rheumatoid Arthritis (RA), Irritable Bowel Syndrome (IBS), Osteoarthritis, Neuropathic Pain, and Complex Regional Pain Syndrome (CRPS) as well as many others on the ever-growing list of syndromes and disorders.

I know first-hand that living with an invisible illness, which chronic pain of is, can mean being disregarded, misunderstood, or even blatantly being called a liar or crazy or whatever else makes someone else feel better for not being able or knowing how to help. This is one of the reasons why I shifted my blog’s focus to discussing living with FMS, because I understood that there were others going through similar experiences.

We, who are living with pain, need more community as well as resource outlets. This is why I was so glad when I received a message from Jessica Mendes, the founder of PainMaps.com, a resource site dedicated to providing resources for those who experience and those who want to understand chronic pain.

Mendes, who is a ghostwriter and intuitive translator, has been living with CRPS for many years, and began PainMaps as a way of providing outreach with an alternative touch; it’s about allowing ourselves to rethink how see, understand, approach, and care for pain, particularly (but not exclusively) in regards to CRPS, which is also known as Reflex Sympathetic Dystrophy (RSD).  It is a collaborative site that invites contributions for all those who would care to share their experiences and knowledge.

Harkening back to my Boston days, I’d have to say that I am wicked excited about this site, and hope you will be as well.

 Let’s build more community by venturing new paths! Visit PainMaps.com!

Until Next Time,

D.